Posted 4/20/2018 6:27 PM (GMT -7)
Almost Medfree, do you have any reason why you think you should be tested for Lyme (i.e. Lyme symptoms, tick bite)?
I was tested in 2011 (way prior to my Fibro dx) because I had a weird rash that looked similar to Lyme rash, but I had zero clinical symptoms of Lyme and no exposure to ticks at the time (mid January in the northeast). I tested negative for Lyme and 3 different doctors determined I didn't have it, along with 2 pathology reports that dx'd my rash as a dermatological condition. They treated me for Lyme anyway as a precaution.
I just got retested. Negative. Once again, no reason to suspect it, but figured since I got the Fibro dx and I ruled out other stuff I might as well retest and rule it out a second time for peace of mind.
Only thing is the tests for it are not that reliable from what I've read. There could be false negs. Therefore, the dr's rely heavily on clinical symptoms. So I'm not sure if you think it's worth it to test or not. And if you go on the Lyme board to ask questions they are not too open to Fibro dx's. Seems many of them were misdiagnosed with Fibro.
-2005 dx UC proctitis, 2006 UC pancolitis, some pathology reports have suggested Crohn's Colitis
-2018 dx Fibromyalgia
-Current Meds (UC): Colazal, Canasa, Bentyl & Omeprazole
-Current Meds (Fibro): Cymbalta
-Past Meds (UC): Lialda, Asacol, Prednisone, 6-MP, Cortifoam, Levaquin, Cipro, methylprednisolone, Uceris, Lexapro
-Supplements: Probiotics, Cal+D3+K2, Magnesium Malate, Tumeric, COQ10