Hi: I think we can all relate to much of what you said. Fibro can be so, so frustrating and yes--tiring! And maybe the most difficult part is that it often seems to strike us from different directions--involving different part of the body---and sometimes all at once.
Your digestive issues sound a lot like what I went through years ago--had all those tests, and I finally was told my motility was "off" and basically, my digestive system doesn't function as it should. I also did what the gastro doc called "the careful diet" you mention. I'm better in that area, at least for now, but it can still surprise me at times. The diet did help. I can now expand on foods, but I've learned to watch the real spicy stuff (which I loved) because it can flare my gastritis. Sometimes, I have to watch fiber, too.
You said so well what probably all of us here can relate to--and how do we deal with all that? We wake up in the morning to the same issues.
I have no words of wisdom, really. I think it's just a "one day at a time" thing. Focus on what you can do, and pat yourself on the back for what you do accomplish. Take some time for yourself to relax and get fibro out of your head for a while. Hobbies, reading, relaxing music, gentle exercise. My faith and spiritual life are at the top of my list. Balance is so important.
Occasionally, I even spoil myself. I recently subscribed to a craft magazine I've been eyeing for a while. Looking forward, even to little things, is a plus.
Just planned a very simple Father's Day meal for family. I've learned not to overcommit if I can, and keep things as easy and uncomplicated as I can. It should be fun and I won't overdo it.
I take phone calls for our church prayer chain. Odd (or is it?) that on my worst days, I can get a call about
someone much worse off than me. It gives me a new perspective. Also, I rarely volunteer anymore, but this is something I can do easily from home.
Coming to this forum is therapeutic to me. I gather all the new suggestions I can find. Right now, I'm also researching neuropathy and muscle stiffness. To learn all we can is helpful; yet we can't let that become our life--we go through as best we can.
Last evening, my husband wanted to go to a local fair. I was sooo not in the mood for that, but I did go and had an okay time (very crowded and loud and a little overwhelming). But, as I sat with some friends and talked, my son, D-I-L, and granddaughter showed up, which made my day!
It turned out to be well worth the effort.
I'm not always excited to go places, especially when I'm tired or in a flare. But it can often be worth it. Sometimes I'll go with my husband to an event and do a little walking, then I bring out a lawn chair and magazine. I'm still with him some of the time at events like that and he's terrific about
understanding my fibro issues and when I need to take some time out.
And, today, I'm a little tired and stiff, but in a pretty good mood. I'm starting (soon) with laundry, putting on my favorite radio show, doing some dusting, and alternating sitting/standing jobs. No gardening today--just got a big rainstorm this morning. But on sunny, warm days, the sun is a great muscle relaxer, and I get a little weeding done, too.
I think we always get the idea we have to accomplish something or we're nothing! But with fibro, we do what we (realistically) can, pacing ourselves--it's not a race. If anyone doesn't like what I did or did not get done, that's their issue. I'm thankful my immediate family is super understanding--that's a blessing.
I don't know how much this helps, but be assured I (and probably everyone here) hear you and sympathize. Pat yourself on the back for your efforts, no matter what--they do count. Wish you the best!!
ETA: For some reason, keeping a notebook handy to write down my plans for the day, reminders, or the more important little jobs we hope to accomplish (in our opinion), etc., etc. (you can personalize it) is very helpful to me. A bonus is that you can cross things off as you go. It's a small thing, but sure gives me an emotional boost and keeps me on track a little better. If you're more computer savvy, you could keep it there.
Pray, hope, and don't worry." St. Padre Pio
Post Edited (Luvzminis) : 6/6/2018 10:55:57 AM (GMT-6)