I had a cold that turned into fibro anyone else?

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Kyyndred
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Date Joined Jul 2018
Total Posts : 12
   Posted 7/25/2018 9:58 AM (GMT -6)   
I understand that there is no known cause for fibromyalgia but I'm looking for coincidences. Jan 5, 2018 I caught a cold. I had a sore throat, runny nose and severe fatigue. The cold turned into bronchitis which a dose of amoxacilin cleared right up in a few days. The cold was gone and the cough relieved within 10 days but the fatigue never went away. Its now July and I'm still tired all the time. After much testing and many specialists I get the diagnosis of fibromyalgia. Has anyone else been sick with cold or flu like symptoms right before diagnosis?

Sherrine
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Date Joined Apr 2005
Total Posts : 17897
   Posted 7/25/2018 2:34 PM (GMT -6)   
I had had a cold and developed a rash on my stomach just under the skin. I was put on a prednisone dose pack and the day I took my last pill I was hit with fibro. I was sitting watching TV and my toes started to hurt. Then my ankles, then my knees, then my hips. This bad pain went up my body in about 45 minutes. When it hit my elbows, it was like I banged my arms really bad and that electrical pain shot down my arms and into my hands and stayed that way for over two weeks. I couldn’t eat or sleep. All I did was cry. I was put on ibuprofen, which was a prescription drug at that time, and it helped settle down the worst pain.

I have not been without pair since that day...31 years ago. But I have found things that have helped me immensely! It’s a trial and error type thing but I have lived a full and enjoyable life in spite of this illness.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2229
   Posted 7/25/2018 6:02 PM (GMT -6)   
One of my therapists, says its neuroinflammation , maybe a virus at the cellular level, lying almost dormant, but acting out in the nervous system..i am not sure what science is saying on it, but this man is a genius ...so i would not count it out

camas
Regular Member


Date Joined Dec 2010
Total Posts : 142
   Posted 7/27/2018 7:21 PM (GMT -6)   
I came down with a cold and sinus infection in 2008, it lasted off and on for 6 month and then I was diagnosed with fibro. I also think it has to do with a virus, they are such sneaky little bugs.

Diet is extremely important for me, along with with movement and sleep. I just had a sleep study done this year and have sleep apnea and now have a cpap machine. I feel like I've got my life back and that cpap machine is now my new best friend. My fibro doc had recommended I have the sleep study about 4 years ago and I just kept putting it off, just wish I hadn't waited so long, but there is reason for everything I guess.

mcspike
Regular Member


Date Joined Sep 2016
Total Posts : 273
   Posted 8/13/2018 2:39 PM (GMT -6)   
Hi, Im mostly on healingwell inthe 'Lyme' category.... id like to share my story because I was MIS-diagnosed, for YEARS, that I had fibromyalgia...In fact, I currently have 2 Drs saying its fibromyalgia, even though Im being treated by a Lyme literate Dr. Who is a microbiologist & focused studies on infectious diseases.

My immune system doesnt react to the Lyme disease standardized tests, that look for your own bodies imune reaction. Its similar to what happens when people get a HEPb vaccine but the immune system doesnt produce antibodies for it. This lack of response of/by the immune system results in MANY people being mis-diagnosed, or being told its fibromyalgia.

The proper term for this DIS-ease should be chronic immune disfuntion(caused by inflammation).

Theres no test to prove fibromyalgia, right? Its a clinical diagnosis...the same goes for Lyme and co-infections due to false negative tests...

Lyme disease needs to be renamed because the LARGE majority of Lyme patients are not only battling lyme infection, but other bacterium, viruses, parasites, fungals, and environmentals. Lyme patients have essentially 'collected' infections of many types over the years. The result of what Ive described, is fibromyalgia.

PLEASE insist that your Dr. tests for reactivation of all the human herpes viruses> EBV, CMV, HHV6, hsv1 & 2 etc. The best lab to use to test for bacterial infectiins is one that looks for the dna of each strain>'DNA connexions'. Two other vital routes of testing> 1) mold exposure, 2) heavy metals toxicity.

IMO, MD's only rely on the standardized blood tests such as the CBC and metabolic panel. Unfortunately, by the time your dis-ease has effected you bad enough that it shows up in those blood tests>at that point, its not reversable.

Tests that look for the melanocyte stimulating hormone, and human growth hormone can reveal how advanced the dis-ease state is. The list of helpful tests requires another post.

Anyhoo, yes fibromyalgia is real;BUT its REALLY chronic inflammatory immune disfunction

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17897
   Posted 8/13/2018 7:49 PM (GMT -6)   
Fibromyalgia is not an inflammatory illness. We have members that show no inflammatory markers in their blood work but yet they have fibromyalgia. Notice in the statement below that the American College of Rheumatology calls fibromyalgia a disease.


“It does not cause inflammation or damage to joints, muscles or other tissues. However, because fibromyalgia can cause chronic pain and fatigue similar to arthritis, some people may advise you to see a rheumatologist. As a result, often a rheumatologist detects this disease (and rules out rheumatic diseases).
Fibromyalgia - American College of Rheumatology”

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

camas
Regular Member


Date Joined Dec 2010
Total Posts : 142
   Posted 8/22/2018 1:51 PM (GMT -6)   
Thank you for passing along your experience with Lyme disease and fibromyalgia.

Whether or not we have inflammatory markers or not fibro is still a mystery disease and I believe mine was caused by a virus and viruses are great imitators and mutators.

Hopefully, I'll be seeing my fibro doc in October and will bring up the lab test that is now looking for DNA strains.

Kyyndred
New Member


Date Joined Jul 2018
Total Posts : 12
   Posted 9/5/2018 7:48 AM (GMT -6)   
Thank you everyone for your input on my questions. I'll be asking my doctor about these blood tests as well.

wayup
Regular Member


Date Joined Nov 2013
Total Posts : 40
   Posted 9/9/2018 6:08 PM (GMT -6)   
Viruses can activate mast cells. Some research suggests fibromyalgja may be related to mast cells becoming over active (possibly MCAS, or mastocytosis for some people). We had a member mention a mast cell patient in a group who is an endocrinologist who had her MCAS tirggered by a strep infection.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2229
   Posted 9/9/2018 9:31 PM (GMT -6)   
I do know that our blood levels , do not show inflammation..

But i do think we have it at the cellular level..my blood levels show very low inflammation but i literally cannot move, without anti inflammatories..

My physical therapist says the inflammation is there, just not in the blood..which is why its more described as neuro - inflammation. I guess this is not proven at this point but highly suspected . Many fibro specialist treat patients with strong anti-viral meds..i was always afraid to go that route , because i am super medication sensitive. I use supplements to improve the immune system.

I just feel there is a lot not clearly understood or proven with this disease. My family has multiple members with what is considered a genetic form of fibromyalgia. It presents in each of us in varying ways.

Lj
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