Artificial Intelligence proving fibromyalgia is "real"

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AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1774
   Posted 8/12/2018 11:15 AM (GMT -6)   
Hello all. I haven't been on in quite some time, but I read this article this morning, and found it so exciting that I wanted to share. It discusses a study using AI that shows an objective, measurable difference between the brains of those with and without fibro. WE know it's "real"; we live it everyday. But I find it exciting that there are researchers out there who are still working very hard to dispel the skepticism surrounding fibro (and us) and continuing to try to find/fine tune treatments.

https://qz.com/1349854/ai-can-spot-the-pain-from-a-disease-some-doctors-still-think-is-fake/

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17897
   Posted 8/12/2018 3:41 PM (GMT -6)   
Hi, Austen! This was an interesting article. I’m blessed that all my doctors believe in fibro. I think that is what is most important. Try to find doctors who are also diplomates. They have to take tests every couple of years, I believe, on the recent things in medicine. It keeps the doctors up to date.

Fibro is recognized by the American Medical Association, the American College of Rheumatology, the National Instatutes of Health, and the World Health Organization just to name a few. So things are getting better for us. It wasn’t that way just a handful of years ago.

Everyone should try to find doctors who will take the time to listen to you. This way they get to know you and trust what you are saying. My doctor knows me very well and also knows I don’t tell him everything so he admonishes me. I clam up because for 40 years I’ve had so many tests, blood work, doctors’ appointments and I’m sick of them. 😁. So, if I do complain about something new, he jumps on it because he knows it is something that really is bothering me for me to mention it. My complaints are never questioned.

But it is good that researchers are trying various things to help us. Our pain is very real and doctors need to not only listen to us but keep abreast of everything new in medicine. I definitely don’t want to be treated by a doctor that bases his diagnosis on just his or her opinion. If your doctor doesn’t believe in fibro, you definitely need to change doctors. Remember...50% of the doctors graduated in the lower half of their class.

Thanks, again, Austin! I hadn’t heard about this and it is kind of exciting!

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Lendi
Regular Member


Date Joined Mar 2018
Total Posts : 336
   Posted 8/13/2018 9:04 AM (GMT -6)   
Hello, Austen. Thank you for sharing.

Still and all, there are still skeptics out there. Most are informed but not all. I saw a neurologist (sleep Dr.) who ran all the neuro tests and in the end told me he didn't know what was wrong with me in the neurological area all though there is something. Then, he said he thought I had fibro, handed me an informational sheet, then told me he knew nothing about it and to come back in a year. Needless to say that year has stretched into more than one.

Not to mention just people who know nothing about it and just roll their eyes if you say anything about pain or fatigue or....

Thankfully, more and more are informed as Sherrine said.
What if trials of this life are Your mercies in disguise.

Laura Short

"Blessings"

FM/CFS, BP, gastritis, diverticulitis, anxiety/PTSD, adult ADD, hypothyroid, brain lesions, sleep apnea that doesn't respond to a c-pap as far as sleepiness/fatigue goes, insomnia and only sleep in stages 1 and 2 and REM with a tiny bit in 3 and 4.

mcspike
Regular Member


Date Joined Sep 2016
Total Posts : 273
   Posted 8/13/2018 5:55 PM (GMT -6)   
I was MIS-diagnosed as having what is actually NOT an official disease, but a syndrome aka fibromyalgia. Just look at the meaning of it= it only describes the symptom, but doesnt refer to its 'CAUSE'.

I was diagnosed w/fibromyalgia in 2010 by an intergrative MD who refused to accept I have Lyme disease. That same Dr. Also told me for YEARS that my acute flares of severe upper abdominal pain was simply food intolerence. She NEVER considered gall bladder disease. She basically called me liar when I said I WAS off gluten & dairy. I ended up going to a gastroenterologist who immediately ordered an ultra sound, then I had to have emergency gall bladder removal. It was too late to save it. what CAUSED my gall bladder disease, I asked her, and she said poor diet.

Oh my GAWD... NO, no, and a great BIG N.O. wrong. It was severe inflammtion that was caused by Lyme disease!!!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17897
   Posted 8/13/2018 7:35 PM (GMT -6)   
Fibromyalgia is a true illness and is accepted by medical associations. It’s as real as Lyme disease.

I’m sorry you were misdiagnosed but we have had members come on who were misdiagnosed with Lyme disease and had taken antibiotics for a long time. It turned out they really had fibro. So it goes both ways.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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