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TommyBaker1
New Member


Date Joined Feb 2015
Total Posts : 18
   Posted 8/24/2018 6:03 AM (GMT -6)   
Happy Friday everybody,Im new to this forum. Im just wondering if there are any chronic pain sufferers. Ive not been myself of late,fatigued out,chronic widespread nerve pain (I think,hard to explain the pain),restless legs just started (involuntary and voluntary movements),walk round like a zombie,weak bladder,urgency and leaking also got irritability. Im a 41 year old male,It started 3 years ago when my appendix burst,stressfull times. Last 4 weeks though,worst ever. Ive not been diagnosed with anything,which is so hard for me due to a demanding job and children. My rhemotologist says I have got a neurological disease,but not sure which one. My immunology is also low. Any advice on what to do with body pain,as it really is becoming unbearable. Thank you x

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17897
   Posted 8/24/2018 8:24 AM (GMT -6)   
Hi, Tommy, and welcome! We all have chronic pain in this forum. Some are worse than others. The pain will wax and wane. If it turns out that you have fibromyalgia...which doctors now are thinking is a neurological problem...you could be in what we call a flare. The pain is worse than usual.

Fibromyalgia affects all four quadrants of the body with pain, which is what you have described. We have fatigue, many times cognitive memory problems, plus a variety of other symptoms. Some have certain symptoms and others have different symptoms. We are not all alike.

The same goes for what helps us get in control of the pain. I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a muscle relaxer called Robaxin (Methocarbamol) that has made a significant difference in my pain. I also walk daily as a gentle form of exercise and pace myself when doing things. All of this has helped me live a full and enjoyable life in spite of this illness.

There are more powerful medications like Lyrica, Savella, Cymbalta and various other antidepressants that have helped some. I chose to try the over the counter things first and they work for me.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. At the very beginning is an interview with Dr. Clauw who has been studying fibro for years. He explains the neuro connection quite well. Also, be sure to check out the links about the magnesium malate and vitamin D3. Deficiencies in these nutrients can cause pain! All of Fibro 101 is good so do read it.

I’m looking forward to getting to know you better. Don’t hesitate to ask questions because we do care about you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Lendi
Regular Member


Date Joined Mar 2018
Total Posts : 336
   Posted 8/24/2018 9:20 AM (GMT -6)   
Hi, and welcome. I would get a 2nd opinion and I'd probably go to a neurologist since they can figure it out better either way. If it's fibro there was nothing to lose. But, at least you might know more. Have you discussed your appt. with your PCP. What does he/she think?

I wish you well and hope you get some answers soon.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2229
   Posted 8/26/2018 12:15 AM (GMT -6)   
Hi,

You can read fibro 101 , at the top of the page..has a lot of good info there

I used to have the restless leg issues, but taking magnesium usually controls that, its also good for our muscles

All of us have pain in varying levels, also fatigue..

One of my physical therapists believes there is neuroinflamation at the cellular level..in my bloodwork, it does not show inflamation yet its believed to be there, maybe from a latant virus..i get help from anti inflamatories, but i am not at all sure that works for everyone..

Have they checked your vit d levels? I managed with fibro but when my d levels dropped, i had every symptom and felt 80.

I use a generic verion of corvalen m for fatigue. It helped tremendously as i raised my kids to keep up with them..

I am med sensitive, so topical pain relievers help relieve bad areas of pain , when i cannot really tolerate more medication.

As far as i know its still about 20 per cent with fibro are male.

Its very trial and error what helps each of us.

Lj

TommyBaker1
New Member


Date Joined Feb 2015
Total Posts : 18
   Posted 9/5/2018 1:07 PM (GMT -6)   
Hi ya. Thank you for the replies. Im handling most of my symptoms....The one I cant though is....I go to bed really exhausted,drop off quite easy for literally a maximum of 2 minutes,then Im wide awake,then widespread body pain and restless legs start. Next 2 hours I feel like all my bones in my body are breaking,urge to stretch and twist. Horrible spiral it is. Anybody else have this or know a solution. I would be forever grateful

Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 9/5/2018 2:30 PM (GMT -6)   
Maybe it is restless leg syndrome? Gabapentin is a medication that is popular in treatment of some disorders. Perhaps that is something to discuss with you doctors? It is a nerve medication that can calm things down. Good luck with it. Hope you find something helpful.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17897
   Posted 9/5/2018 5:59 PM (GMT -6)   
I dealt with this somewhat a while back. I just couldn’t get comfortable no matter what position I would get it. I wanted to sleep but couldn’t relax and this helped me notice my pain more. But six years ago I was put on a muscle relaxer called Robaxin (methocarbamol) and it made a huge difference in my pain and it relaxed me enough that I could sleep. I wasn’t getting up many times a night. I only take a small amount so it doesn’t make me groggy, etc. I take it before breakfast and before bedtime. I only take 1/4 of what was prescribed for me and it’s helped me a lot.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 9/6/2018 9:36 AM (GMT -6)   
Sherrine, I also take Robaxin and it is very helpful, I agree! I had been taking Soma for a long time and they did make me foggy. I recently had neck surgery and while in the hospital met a new primary care Dr I really like. He switched me to the Robaxin and what an improvement all around. I am sorry to hijack the post, Tommy! I wanted to add my two cents to the Robaxin. And Gabapentin. Both have been very helpful for me.

Lendi
Regular Member


Date Joined Mar 2018
Total Posts : 336
   Posted 9/9/2018 11:31 AM (GMT -6)   
Tommy, you might be sleep deprived. Check out the symptoms. There is a very long list of them, including pain but much more. Restless leg alone could cause it all. Just a thought.

I would also recommend seeing a neurologist but better yet one who also specializes in sleep. JMHO
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