Has anybody had issues with taste/smell?

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Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 9/4/2018 6:01 AM (GMT -6)   
Hi Everybody, I have been posting on Chronic Pain but my symptoms and issues also include Fibro. I am trying to understand what problems I have are related to what as I struggle to understand and treat them. Hopefully! For the last couple of months I have had a clear nose as far as breathing but I have not been able to smell anything or taste anything, other than determining if it is sweet or salty etc. Not the flavor. Not the scent. Driving me crazy because what is left does not taste good. And obviously this is not OK. I have an appt with an ENT (Summer takes forever to get a new DR appt) in a couple of weeks but I thought I would ask. I am pretty sure if the issue is auto-immune or fibro the ENT will be clueless. That seems to be how things go with psoriatic nails or anything not a normal symptom.

Has anybody experienced this? Thank you for reading.

Lendi
Regular Member


Date Joined Mar 2018
Total Posts : 336
   Posted 9/4/2018 12:59 PM (GMT -6)   
I do. I think fibro can cause just about anything to happen. But, it was at it's worse when my thyroid went high. I had been taking replacement hormone when it did it's thing. I have a nodule on my thyroid for whatever reason and that's what caused it. Took forever to get it to normal and now I only take a tiny bit of hormone. But, the biggest thing in my memory was that nothing tasted good and tomato's were one of the worst. They tasted rotten.

For me, it comes and goes now although my thyroid gets checked often and it's been fine for a long time.
I wonder if it could be meds possibly as well.

I can say that my SIL had a cold a couple of months ago and still doesn't have much of a taste or smell since. I researched it but to be honest I don't remember what it said. Fibro fog at it's best.
What if trials of this life are Your mercies in disguise.

Laura Short

"Blessings"

Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 9/4/2018 2:24 PM (GMT -6)   
Thank you for your reply, Laura. There are a bunch of things it might be so I think mentioning it to a lot of people will probably get me on the right path to at least figure out why I have it but at best correct it. I appreciate your time. It did start with a sinus infection but that was a few months ago. I am on strong meds for auto-immune but have not seen that as a side effect. I am getting some blood work later in the month and thyroid is on the list. Much appreciation!

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2229
   Posted 9/4/2018 3:32 PM (GMT -6)   
Mine is over taste , and smell..

So less spices taste like more, and i smell everything acutely..as far as i have heard that is more common with fibro than the opposite which you are describing...

So often , people with fibro have more than one condition so it can get confusing

Lj

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17897
   Posted 9/4/2018 4:16 PM (GMT -6)   
Hi, Darla, and welcome! It is so easy to blame strange things on fibro. I’m glad you are seeing an ENT and don’t be surprised that they will know about fibromyalgia...if you have a good board certified ENT. I have a profound hearing loss from another illness but my doctor knows about fibro also.

I do not hear about loss of taste or smell very often in this forum. There are a myriad of things that can cause that problem. Age is one. Also not having enough vitamin B12 can cause this problem too. Below is a link from the Mayo Clinic listing other things that could cause this problem. You will notice that fibromyalgia is not listed.

/www.mayoclinic.org/healthy-lifestyle/healthy-aging/expert-answers/loss-of-taste-and-smell/faq-20058455

Do let us know how your appointment goes because we do care about you.

Be sure to read Fibro 101... the first thread on the forum. There are links to good info about fibro and you will learn a lot there.

I’m looking forward to getting to know you better. Don’t hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 9/4/2018 3:23:17 PM (GMT-6)


Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 9/5/2018 5:19 AM (GMT -6)   
Thank you so much! I am checking out the link right after I post this. To be honest, my fibro diagnosis has just been mumbled during my appointments with my neurosurgeon (recent 4 level acdf) and my Rheumatologist. My primary diagnoses right now are psoriatic arthritis and mixed connective tissue disorder. I have been trying to find out what is wrong with me for a few years but I keep having surgeries which complicate the process. Also, my Rheum. is really lacking in interest and knowledge and I have an appt with a new one early Oct.

I am on a lot of meds...methotrexate injections weekly at a top dose, Cosentyx monthly after trying Humira and Enbril for quite a bit. I am sure I sound like a hypochondriac constantly having one thing after another 'wrong' with me and all of it involves either nerve pain, arthritic pain, joint swelling, muscle issues...I think the fibro diagnosis has been added to the list just recently. But I knew i would find a nice and knowledgeable group of people here that might shed some light for me. And I have.

I am overwhelmed with the constant issues I find myself facing but I am not ready to give up and say nothing will help me. I am almost 59 but I feel like 99. This smell/taste thing is probably a side effect from something or related to something. I am going to check the link now thank you so much! My smell and taste were exceptionally acute...annoyingly so! The abrupt change makes me pretty sure it is not age.

Thanks for the warm welcome! I like to participate in conversations...ask the chronic pain people...I hope you are not sick of me soon.

Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 9/5/2018 5:22 AM (GMT -6)   
The link was very helpful, Sherrine! I guess it could be a polyp if those form with a sinus infection. I had one in June and that was the start of this but since I recovered normally I thought this would pass. Usually things that should resolve and don't end up to be something my crazy body is over-reacting to with auto-immune roots. I appreciate the love here, thanks!
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