I have not used amitriptyline, myself. This is an amitriptyline post Rockon has up at myPatientMatch. I don't think she will mind my sharing since she has posted it here before and in mast cell groups. I think, however, that I will make it temporary post, so save the the links if you will want it again. Or if you want it all again, look for it at myPatientMatch.https://www.mypatientmatch.com/posts/amitriptyline-study-no-drs-are-telling-me-this-59555
And the same thing goes for this post about
Vitamin D stabilizing mast cells. It's somewhere in here. Oh good, I see it has it's own post, rather than me posting to the longer mast-cells-affecting-bone-health thread Rockon had there. http://www.mypatientmatch.com/posts/vitamin-d-deficiency-activates-mast-cells-60467
Well I see you have just 2 posts here, so maybe the topic of mast cells is new to you? That could be an alternative cause for feeling pins and needles, that maybe has not ever occurred to you or your doctor. I have seen mast cell patients talk about
some of the mast cell triggers that set them off with that "needles" symptom. Like being in the sun, or for some people any exertion. Like one man said exertion and even having sex has been doing it to him for over a year. I saw someone mention getting it from a medication, and not realizing the medication was the cause, because the med that was doing it is supposed to be a mast cell stabilizer. So maybe start paying attention to what could be causing it? Have you tried eleminating any foods, for example?
So I suppose anything that triggers your mast cells could trigger that if you are prone to it? Fibromyalgia patients do have more mast cells in their skin. Mast cells may even cause our fibromyalgia symptoms.
(Search the word "Reference" at that same site, for more on mast cells.)
I don't mean to assume the needkes sensation is definitely a mast cell issue, or sound like I am stating for a fact that it is. It's something I am starting to learn about
, so I thought that I would mention the possibility to you in case the topic is important after all. It's not a certainty.
I am not a kratom user, I tend to wait and wait,and letting other people try things for a good while before I ever get up the nerve. (Chicken.) I just did a search in one mast cell group and I saw that a few mast cell patients use it. Some posted that they tried it but as anything can, kratom triggered this or that mast cell problems for some people. Like someone said it made them itchy. It helped pain, but was not acceptable because of the itching. I have it in my head that kratom works at the same receptors as opioids (?) but if it is triggering other symptoms, and it sounds like you think maybe it does, then maybe it's not the thing for you. All I can suggest is trying it off and on until you are sure. It's so hard, when we have these difficult symptoms off and on, off and on, anyways, isn't it? I wish you luck!
Post Edited (wayup) : 11/18/2018 3:22:41 PM (GMT-7)