Hey there Sherrine,
thanks a lot for your reply! I'm glad you found a med that takes the edge off - methocarbamol and I have some history
A long time ago I took it and the side effects were at that point in time, truly intolerable. I might try again.
I'll definitely take a peek at Fibro 101 to familiarize myself with some stories and facts - I'm sure they are fascinating.
Well, trigger point therapy has been the foundation of my own (somewhat effective) treatment options; around 3 years ago I started trigger point therapy, first with pressure, then during osteopathy, then dry needling, then trigger point acupuncture and lastly, as well as currently, high-powered shockwaves (the latter ist thus far the only truly working therapy - which is however extremely painful and extremely novel, and (sigh) extremely complicated.
I believe at this point I have memorized all the trigger point diagrams and their pain patterns - god, I wish they'd only cause pain.... their clinical manifestation goes, as you probably know, way beyond that....
I've been trying to supplement as well, with omega 3-6 fatty acids, ashwagandha, uridine monophosphate, COQ10 and a couple more - magnesium dind't do anything for me unfortunately.... neither did vitamin D... I still take them in order to avoid any potential deficiencies but couldn't record betterments stemming from supplementation.
Did you know that by now, researchers assume that all fibromyalgia pain (and some of the dysfunction) actually stems from trigger points? Thus, in order to resolve fibro symptoms, one would have to eliminate all TPs ("bottoms-up" approach), combined with a "top-down" approach to reset pain processing in the brain. From all the info I could gather, that is currently only possible via cardio training and very few medications, such as Amitriptyline. Well, easier said than done of course!!
I was inquiring about
the laser treatment, because I did a couple of sessions for the first time lately and have found some research demonstrating its efficacy in fibro treatment - it appears to be, just like the high-powered shockwaves, an extremely new modality for these devices and hence, I can't as of yet corroborate that with other patients. What gave me more hope is that I "felt" the effect of the high-powered laser during and after the few sessions I did - that is, I felt immediate, positive effects on my body in terms of both pain and other symptomatic, including pressure and fasciculations.
Given that there is neither any clinic offering that treatment close to me, nor are sessions covered by insurance, I was considering purchasing my own device to give it a go at home. If I was SURE of its potential long-term benefits in fibro and myofascial pain syndromes, I'd save up the necessary €10.000 for the device in a heartbeat.
Our lives are after all, affected in all areas by our diagnosis. All I wish is to regain some quality of life and if I need to purchase this dream for the rest of my life, I will. For I learn a lot on the way and accrue helpful information for patients in similar predicaments and hopefully, they can benefit from what I've learned as well.
How long have you been dealing with your problems? Can you do some fitness training to keep energy levels constant?
I look very much forward to hearing more!