"Thank you for your comments. You sound like a very strong individual. Your son is young, and his chances of getting a liver transplant should be good. I wish to express my deepest sympathy for the pain, and the struggle, you and your son have been challenged with."
I am not sure if I offended you some how, if I did then I am sorry!! I can only say you too have a right to your opinion and I hope it won't be the last time you are here in this forum. EVERYBODY has experience with this virus and that experience is what we seek here. Right, wrong, good or bad. As Pink Grandma says "knowledge is power". I am in WA state and am being treated by a great Hepatologist. He took the time to explain Genotype, viral loads or quantitives etc... I am not an expert but I do know that I belive what he has told me and it gives me the strength to go on with my treatment after 21 weeks I still have 31 weeks to go and there's not a day that goes by I feel like quitting. But as I said I am 44 with a young daughter of 8 and I want to be around to see my grandchildren.
Pink Grandma thank you for your words of kindness!!
"Thank you Cary. I am aware of normal LFT's, and yet one can still have severe cirhossis. Sadly, the doctor who did my liver biopsy 10 years ago, will not do another biopsy, unless I agree to undergoe treatment. The reason was a logical one, as he explained the treatment is expensive, as is the biopsy, and there is no point doing another one unless I agree to the treatment. My biopsy 10 years ago showed "liver specimens of excellent quality, with no sign of inflamation, minimal degree of activity." There was no test for viral load at that time, but I had an RNA Quantative test 2 years ago, showing a viral load of about 4 and 1/2 million. Cosidered high. Though I have abruptly stopped drinking several months ago, I am haunted with thoughts of looming death. I just don't understand why from the age of 14, I poisoned my liver with toxic street drugs, alchohol, then finally getting the virus in the summer at age 17, why am I not dead after carrying the viris for 25 years to the date of my biopsy 10 years ago. There should have been some indication of serious damge, or even minimal scarring? I have had a lot of therapy over many years, self destructive behaviour appears to be a curse I was born with. I am careful of the research I do, but it is so frustrating to hear ever changing studies, that cast doubt on earlier theories. It appears there are current studies indicating that it is not LFT's, viral load, nor geneotype, that seem to predict the natural course and history of HPC, but it is the individuals unique immune system response, suggesting a genetic predisposition that affects the rate of progression. Even this appears to contradict itself, since the virus uses the immune system in it's favour. What does one do? I walk an hour a day, abstain from alcohol, eat a very healthy diet, yet what am I doing? Am I strengthening my immune system, only to encourage a greater degree of inflammatory war already going on in the liver? I am confused, so much information. So many thoughts, so many fears.
Shelly you go girl!!! What would we have if there is NO hope!! And Cary you are awsome!!! I have an old friend that used to day FIDO--Foget it and Drive On!! I learned a long time ago that anger can eat you up. Besides its such a wase of energy. We are all so lucky to have this forum!!
"Butterfly, thank you for taking the time to share your thoughts. It is precisely your tragic story the keeps a burning fire of indescribable anger burning deep inside me. It is what prevents me from continuing to post and share any input I have on HPC on this forum. I have learnerd through many years af hard experience in pshychiatry, anti-depressants, the power and deception of the pharmaceutical companies who fund large amounts of dollars towards the research for studies of new diseases, when they cant find one, no problem, they will just invent one, then develop new drugs to address the symptoms, bringing in billions of dollars in profits at the expense of the public, human guinea pigs. I was one for 25 years, until I miraculously found the "road back." A misdiagnosis that made my life hell. I am free of those drugs now, and I have learned that in the majority of cases, the best psychiatrist in the world, is the one "right inside your own head." I am so angry that your husband was told there was minimal damage to his liver. The fact is none of us know what to believe anymore, because the drug companies that fund the researchers (who desperately need money to support there own families, and careers) will only publish the research papers that "THEY" want the medical proffession to know. The medical proffession rarely questions these studies. They rarely publish studies that will not make them any money. The world is filled with mass propoganda, and my heart goes out to all of us who are mislead through motives of greed, money, and power. I must assume you live in the United States, because in Ontario where I live, doctors will not do a second biopsy, unless you agree to undergo HPC treatment. I consider that emotional blackmail, considering I polluted my brain with dozens of psychiactric drugs, which were at many times wrongly prescribed through poorly trained psychiatrists, or ones who were simlpy too overloaded with patients, that they simply slaped a label on your forhead, and forever made you known to the public as a "misfit." At least I had one psychiatrist that offered an apology, and stated I had the right to sue him if I wished. I am not a vengeful person. Instead, I turn the anger inward, misguided, towards myself. Now that is a sickness that I am guilty of."