I, too, am sorry I've not been able to be here lately, and my response will be short...but I just had to write. I'm so sorry that Will is not doing well. It does sound to me like encephalopathy. Have him make a doctor appt. and have some blood work done. Does he have a local doc, so you don't have to make that trip to Gainesville?
I believe SSI and Medicaid are tightening their budgets. It is more difficult for a young person to get those benefits. I do NOT believe he has to wait until after a transplant to get Medicaid, though...although he would need to stop working. Is it possible for him to move back with you temporarily? That might not be any better, though, as they would then consider the entire household's income. It truly sucks. If he has been turned down for SSI, he needs to wait 6 months to apply again...if it has gone to court. If not, get a lawyer. I don't recommend the ones who advertise on TV. The truly good ones don't need to do that...they get their clients and rep through word of mouth. Even so, don't expect him/her to go in there and fight for the client. He just takes care of the paperwork. Somehow, though, I think SS pays attention more if there's a lawyer involved, as they know then that the applicant is not going to just give up. I can tell you that anyone who has liver disease is going to start feeling chronically exhausted at some point. If you have any kind of counseling service in your area, that might help him. There is one here that charges on a sliding scale. My daughter went, and they only charged her $2 a visit. She is currently going to Clay County Behavioral Clinic and getting counseling for free...though she has Medicaid and that might be paying for it. Look in your Yellow Pages under Social Services.
This is my month of tests and doctor appts., and I'm also helping the fellow in Canada who is writing a book. That's time-consuming. I got a surprise from him yesterday, though--a nice vase of flowers was delivered! The card said it was in appreciation of all my time and effort. Sweet.
My thoughts and prayers are with you both.