Bonnie, hi again. I was thinking about your post and thought I would re-read it. You asked the question " holy s**t does anyone know what they are doing". I would propose that you listen to Pink Grandma. Read everything you can and print out things as much as possible. Yellow highlight the things that stick out most in your mind. Make a list of questions you would like to ask the Dr when you go and don't be intimidated by them. If you have a basic understanding of the disease process then it will be much easier to communicate with the Dr. He is then more likely to give you some direct answers. Educating yourself is the best thing you can do for your husband and for yourself. This forum has so much information available to us all and you have the internet too. The paticipants that post here are very well versed in the disease and will either answer your questions directly or give you websites that will answer them.
I guess what I am saying in relation to your comment/question is yes. You'll know what they are doing and what they should be doing. And, if they are not you'll be asking why not.