We spent the last 2 days testing, labs, counselor, coordinator, chest xray etc. We have no answers and dont know if we are any closer to getting on the list. I have no idea what his meld score would be. He was really poorly yesterday with a lot of confusion and anger.
He has had a good day today, dr's gave him some ambien, we couldnt afford the script at 156 bucks for a 1 month supply and medicaid refused to fill it so he did without. Yesterday the dr gave him a sample and he took it last night. OMG he got up feeling like a new person, the sober husband I used to know. Well I figure if that made him feel so much better than we will have to put off a bill or something to get it. I called today to get a partial fill, 47 bucks for 10 tabs, ouch, so I called walmart to compare prices and found out there is now a generic and it would only cost us 57.00 for the full script! so I went and got it, he will not be taking it regular but he will at least get some sleep. Dr Feghali called today, there was something in the nuclear test they did on his heart that he didnt like, he wants us back up there tuesday to talk with him and see what direction we are going to go, definitely heart catherization.
One thing that puzzles me about all of this. He was diagnosed back in Oct, you would think someone, somewhere along the line, would have ordered some type of testing to determine the condition of his liver, biopsy, mri, ct scan, anything. To date no one has looked at his liver, not even an ultrasound. We finally have an mri scheduled for next tuesday down in houston, I dont know how much longer we can afford to go back and forth, its almost 100 miles each way, plus the parking etc.