I inherited my mother two years ago with her liver disease and I honestly can't tell you what stage she's in what mess she's in, I can just selfishly bawl about the messes she makes when her ammonia levels go up and I don't know how to get her back to normalcy. She is also an insulin dependent diabetic and at times I feel like I'm battling wars with no weapons.
I have some questions for anyone who has answers and please forgive me if I sound callous. I'm tired, I'm a single mom with three kids, one of which is one year old and not able to understand to stay out of grandmas boo boos and I was told she was coming up here because she didn't have long. I don't want to put an expiration date on her, but I might need to make other arrangements and such.
I come from a more than likely model dysfunctional family so we're great at lying to eachother and saying yeah sure everything is fine, don't worry about it. I am hoping someone can tell me, if the drs are telling me they don't understand how my mom has made it this long and she keeps having these spells of "wacky weed", sorry everyone I don't know what else to call the moments of insanity from high ammonia levels, hey moments of insanity from high ammonia levels...I just don't get much sleep because she wants to sleep all day and she's up at night. She likes to roam and I'm always afraid of what she'll get into. She's decided that she wants to run outside and use the potty, that's always interesting.
What are some of the signs that the end is approaching if any...when you all say that the scores go up for a liver transplant does that mean that the condition is worsening??? I guess I never asked her drs all these questions because she chose to go dnr due to age and other factors, I didn't ask her about her choice I just accepted it, right now I sadly am so tired I hold my breath everytime they take her in. I'm sorry to act to sound so cold, I know so many of you are fighting for family members and more time and your own lives, and I hope God hears and honors your prayer requests for His glory. I am sadly just hoping for an out.
Take care and good night all!