Newly diagnosed

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New Member

Date Joined Apr 2008
Total Posts : 2
   Posted 4/30/2008 3:00 PM (GMT -7)   
Well, I just was told that I have AIH. My liver damage is charted as having stage 2-3 fibrosis. I can't tell if this is bad or not. My doctor is Indian and it is quite hard to understand him. I am also trying to have a baby before I am too old (now 39.) I also have Hypothyroidism, Antiphospholipid Antibody Syndrome, Alopecia (unexplained), and Lymphedema (not sure I buy this one).

The doc wants to wait 2 months to retest me prior to putting me on steroids. I underwent gastric bypass in 2001 and have maintained my weight, so he is concerned that the steroids will cause me to gain my weight back.

Has anyone been successful in getting pg after being diagnosed with AIH? I have a feeling this diseases is far too "case by case" in nature and I will have to wait and see how things progress or digress.

Regular Member

Date Joined Nov 2007
Total Posts : 460
   Posted 5/1/2008 3:48 AM (GMT -7)   
I don't have AIH . I have cryptogenic liver disease. With fibrosis. I am not yet on any medications, besides lactulose. In my opinion. (I'm no expert) I only know what I read. You'r stage does not sound bad to me. I am a 4-4 which is end stage. This forum has been a wealth of information for me. Hope you get the answers you need. june

Regular Member

Date Joined Aug 2006
Total Posts : 469
   Posted 5/1/2008 4:11 AM (GMT -7)   

Hi and Welcome to Healingwell.

I too have AIH and you are right about this disease seemingly going "case by case". I am unaware of the statistics that say how easy or difficult it would be to become pregnant and successfully carry a child while having AIH or on any of the medications that are used with this disorder. I was recently diagnosised with stage 1cirrosis following my last biopsy, prior to that my last biopsy showed stage 4 fibrosis. Hopefully your doctor and you can control the damage done and slow down the progress of this disease. I do understand what you mean about not understanding your doctors accent. My GI doc is also from a different country and has a deep accent. It was so difficult at first for me to understand him and him to understand me. It helped me when I asked his nurse for assistance. She works with him all the time and was more accustumed to his speech than I was, so she stayed with me through my appointments. Also the office I go to is a part of a medical school so there are several residences available to help me. It is so important to be able to communicate with your doctor anything you have to do is well worth it. This disease is so confusing itself that you don't need the added pressure of miscommunication.

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