Hello Scared_in_oregon

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Regular Member

Date Joined Mar 2008
Total Posts : 197
   Posted 5/20/2008 12:49 PM (GMT -7)   
Hello Jackie,
 and welcome to the HealingWell forum.
I'm really sorry that you are going through this all alone. You must really be missing your husband a lot these days. There are a lot of really nice people here to talk with and offer you advice and support.
I haven't been able to find your first post, so I'm not sure of your diagnosis.
My husband has HepC, Chirrosis, Hemochromatosis, and Liver Cancer. He is cold all the time and sleeps a lot. He doesn't have the itching all the time, just once in awhile.  He has pain meds when he needs them, but your pain sounds awful bad.  Are you taking good care of youself? Have you learned the right foods to eat?
Hope to talk again soon,

Post Edited (Caregiverx3<1) : 5/21/2008 8:16:00 AM (GMT-6)

New Member

Date Joined Apr 2008
Total Posts : 9
   Posted 5/22/2008 1:59 AM (GMT -7)   
  Hello Carol, Thank you so much for talking to me at this time, I have hep-c and I dont know what else right now, I first posted on here 4-23-08 and I was kind of scared to talk about all this to others, but after I had read some of the posts I just went ahead and did it, Yes I miss my husband alot and I feel that if he was here I would not be sick, Because before he was killed I ate good and kept busy, but I guess even if he was here this mess would of caught up to me anyhow.
Last year I had to go through the giving myself shots of copagus and pagus its s type of intorfuron ( I cant spell for crap these days,)
I went through this for 6 months, Then at the end of the 6 months they took some MORE blood and told me that it (the hep-c) was undetectable, that it had went from over 300 million to undetectable. Then I started getting sick again and had to go back to the drs just to find out that my numbers had gone up higher than any of these backwood drs had ever seen. Thats when they FINALY decided to do a liver biopsy and found out I am in stage 3, They have me on methadone for the pain, That is what they are giving to people here in chronic pain. There are times that it doesn't do anything but take the edge off and then I still have to go in and get a shot of toradol, I am always hurting, and I itch like crazy all over my body, I cant sleep at night, but I sleep off and on all through the day, I have this funny sweet copper taste in my mouth, and I feel like I'm freezing ant times. I cant hardly eat because I feel like I am going to vomit, but I havent really lost that much weight, My legs hurt, my side hurts (the right side) I get sharp stabbing pains that take my breath away, and it is also hard for me to breathe at times, I get out of breath just walking out to the trash. I go to the store and I walk down one isle just to sit at the other end and rest for a few minutes, then do it all over again.
My dr set up an appointment for me to see a specialist, but it turned out to be a FNP, that wanted 300.00 just on the first visit, I told them I didnt have that kind of money and I have no insurance, (which is really bad when you are this sick), Well that FNP canceled the appt,
 So here I am just sitting here up my finger up my nose, (sorry) but I dont know what else to do except wait til I get almost to stage 4 and go get on the transplant list I guess,
  I am sorry to keep you here so long, I know you must be saying, Ok Ok already.
ButI have no one else to tell this to and you seemed like a nice person, as all of these people here,
I have me email address on here so if you would like you can contact me there, its alot easier for me to get to my email, since it just pops up, and it takes me it seems like forever to remember my password on here, I guess the mind is slowly going.
Thank You Again,
Jackie     5-22-08
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