Hi, All! First of all, Lucy, my daughter has not worked enough in her life to qualify for regular SS disability--thus the SSI. So she will only get Medicaid, then. It's a problem, as so few doctors accept it anymore.
Well, I had to switch to an ostomy bag last night, I was draining so much (a good thing.) That kept up until this afternoon and now it has slowed down to a few drops, though there's still a lot of fluid in my midriff. I got a call at 8:30 this AM from the P.A.'s office, wanting me to come in at 10 for a CT scan (my f/u appt. was at 11:30.) Well, I take the van for the handicapped, and cannot change things last-minute like that. They should know that by now. So I told them that, and that I would be there at 11:30.
My surgeon was tied up doing a transplant, so I didn't see him. The P.A. examined me and increased my Lasix and Aldactone. I have to go back tomorrow for a CT scan. I noticed I had lost 1/2 lb. since my pre-op appt., probably in fluid. Glad I haven't gained weight. I would really like to lose a few more lbs.
I found out last night that my neighbor who takes me grocery shopping, and carries my groceries up the stairs, is moving next month. I can shop by myself, but will have to take a cab home. The cab drivers usually refuse to carry the groceries up. I could do it myself, prior to all this surgery, by making a bunch of trips up and down, but now I can't do it at all. I just don't know who I can ask to do this. Most of my neighbors aren't able to climb stairs. I have applications in at two Senior complexes at the Beach, but there is at least a year's wait. My neighbor is moving to one of them, and she has been on the waiting list for a year. Those complexes have elevators. So it's just a matter of getting by here for another year.
June, you are fortunate to have good neighbors. The problem here is that there is such a turnover of tenants in this complex. The first 5 years I lived here, there was a pretty stable population. However, as time went by, some of them moved to nursing homes and others died or moved elsewhere. The ones I know that will be left, after my neighbor/friend moves, are really not able to help me.
At least the incision is healing well, so if we can get the fluid problem under control, all will be okay. Thanks to all for your thoughts and prayers, and general concern.