Post Edited (dream chaser) : 6/21/2008 7:14:55 PM (GMT-6)
Sorry to hear about your father, and what a thing to be going through with your mother now. I think Pink Grandma is right in saying that every person is slightly different in this end stage disease. I lost my mother to it May 17th, and wasnt really educated on what could be expected. Pink was also right in saying that when they release you from the hospital with not many restrictions and no clear prognosis it doesnt look good. No one can tell you what will happen now, I had no idea about the coma until my mother went into it and after a week died.She never experienced the varicies that everyone talks about, but bad ascites. I agree that she should not be left alone with the amonia levels they could shoot up at anytime and is very dangerous. My mother had a amonia level in the afternoon of 36 went to bed normal and went to wake her up the next morning 9 am and she was in a coma. Got her to the hospital and her amonia level was 306, and never came out of it. So I dont think under any circumstances you should leave your mother alone. My mom also fought for her independence, but realized she should take the help that is there. I hope your mother realizes the same!
Dream Chaser, I want to welcome you to the forum, and also offer my condolences on the loss of your father. I'm sure it must be very, very difficult to now be dealing with a mother who is so ill. Everyone is different, so nobody can say for sure how long she has left. You might try pinning a doctor down as to whether an educated guess would give her 6 mos. or less. If this is the case, you can get Hospice involved. Some have nurses come to the house and some have actual residences where the terminally ill can stay. The fact that the doctors have placed no restrictions on her is an indication that they think she is terminal.
When I was diagnosed with liver cancer, I asked a liver surgeon/hepatologist how much time I had left. He didn't want to answer, but I told him to just give me an educated guess. He said, "Six months, without treatment." That was enough info for me to know I needed to have something done. I underwent available treatments and surgery and am here over a year later, still cancer free at 65.