Nikim, I am glad you found us. I am so sorry you are having to deal with all this. I go to Mayo Jacksonville and have been very satisfied with them. I developed liver cancer from hep C, and they literally saved my life. I was not a candidate for transplant, as my tumor had metastasized to the inferior vena cava. With treatment, it shrunk back into the original tumor, which was huge, and they removed the right lobe of my liver a year ago May. I have thus far remained cancer free.
When you say your mom has been through "tons of tests with few answers," what is it that has been left unanswered? If you have questions, you should definitely ask them. However, due to new privacy laws, you would need your mother's written "okay" for medical information to be shared with you, especially if you are not in her presence.
First of all, I think you should contact the social worker to find out what her concerns are. Have her define "psychological issues." Secondly, Mayo does not accept Medicaid as a primary insurance, only as secondary. Does your mom have Medicare? My primary is Medicare. You probably know that Medicare will not pay for transplants, but Medicaid will. Mayo also has a charity program that can pay some, or all, of her bills if she qualifies financially, and it sounds as though she would. They reevaluate every year. This is my third year on their charity program. I never receive bills at all, which is such a relief and a blessing. This office is located in the Financial Office on the first floor of the Davis Bldg. Your mom would need to fill out some forms and provide them with bank statements and proof of income. It only takes them about 2 weeks to either approve or deny. I have never found Mayo to be about "getting money out of me," and I have had 4 major surgeries there in recent years, the most recent being a month ago. As a matter of fact, I have an appt. there tomorrow for blood work and to see the surgery P.A. I am always seen at the Transplant Center.
I am wondering if your mom had an endoscopy. That would show whether she has varices. Also, her small size and other considerations may make her a poor candidate for transplant. I would certainly ask for more clarification. The Transplant Center is on 3 North of the Mayo Hospital and Building, as your mom may know if she's been there recently. I can also tell you that my calls are ALWAYS returned, even if just by a secretary.
Do NOT start over with another hospital until you fully understand why your mom was denied a transplant.
If there is any other info I can help you with, just let me know.
Post Edited (hep93) : 6/30/2008 2:30:59 PM (GMT-6)