happy 4th of July weekend

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Veteran Member

Date Joined Oct 2007
Total Posts : 502
   Posted 7/5/2008 5:29 PM (GMT -7)   
Hi everyone, I've missed you all so much. I remain so busy everyday I just can't seem to get everything done that I would like to. I still have company and I am still working on my projects but I wanted to say hello while I have a few minutes to myself. To update you on what's happening here; my dad is in Michigan visiting my sister in law. She just can't seem to cope with the loss of my brother and is not doing well. He drove from Florida to Michigan about 10 days ago. He's planning to stay with her for a bit and try to get her back on her feet. He has been keeping her busy every day and trying to persuade her not to go to the cemetary everyday and sit there for hours after she gets out of work.
I am doing well I guess. I have my moments but overall I am being as realistic as I can with the losses we have had.
Now, for all of you:
Toni, I read what you wrote about Wll. That's great news and I am happy for you and your family. Kisses and hugs to you.
John, I read what you wrote about caregivers. It was just beautiful and most of all it was so meaningful. What you said is the truth. Those that are ill and are living in a fog are completely incapable of expressing their gratitude and love but that doesn't mean that they don't feel it. It was kind of you to remind everyone that they are loved. It really should be up there on the heirarchy of human needs. As always you are gentle and kind. Just so you know WE ALL LOVE YOU TOO. You are not alone my friend. 
Carol, I hope all is well with you and your husband.
Butterflythree, hi sweetie, I miss you alot. Are you resting a little more now? I was happy to see that the SS came thru. You have had your hands full and I think of you often.
Connie, I am hoping that your drain is out now and you are feeling much better. I hope your weekend is going well.
Lucy, hi honey. I miss you tons. I hope things are going well.
June, I hope you are enjoying the weekend and getting some well deserved rest. I miss you.
Pink Grandma, You are so wonderful. I hope that you are enjoying the long weekend and doing something nice for yourself. You are so good to everyone else and always doing something for everyone else it's time that you have some fun too. Miss you.
I don't mean to forget anyone so kisses and hugs to everyone. Miss you all.

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."


Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 7/5/2008 6:13 PM (GMT -7)   
Hi Shelly, Sure glad to hear from you. We've been missing you but realize that you have a ton of things to get done. You sound good you busy little beaver you.
And yes I am being nice to myself too. Got my hair and nails done again. Feels good to pamper myself for a change.

Take care and post when you can.

BIG BEAR HUG to you friend..............
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 7/5/2008 6:57 PM (GMT -7)   

Shelly, it's good to have you post again!  This forum just isn't the same without you and your knowledge and helpfulness.

I had a new drain placed on Thurs., and it looks like I will have it for awhile.  I don't have a f/u appt. until the 15th.  It's only draining a very small amount, but as long as there's some fluid I will continue with it.

I hope you're having a good long weekend.  I enjoyed my sister's visit yesterday, and hope to see her tomorrow before she heads back to SC.  Otherwise, it's been restful, with no place to have to go.

Take care of yourself and post whenever you can.



Post Edited (hep93) : 7/9/2008 1:06:03 PM (GMT-6)

Regular Member

Date Joined Mar 2008
Total Posts : 202
   Posted 7/5/2008 9:21 PM (GMT -7)   
Hi Shelly,

It's so good to hear from you. I trust that you know that we think about you when you're not around. You are missed but we know that we need to share you with the other aspects of your life. For me, you and Pink Grandma are the foundation underpinnings of reason and care on the forum. Thank you both!

Regarding the 'note to caregivers' posting, I can't take any credit for it. It was clearly a channeling of what is not said enough because the patients who would say it, can't say it. In reading the loving caregivers' posts, and as a not-yet-critical patient being able to glimpse the condition of the terribly ill, it was such a clear vision of what needed to be said. I felt like a secretary taking dictation. Because of the encephalopathy erasing many short-term memories of the symptoms, I am not joking when I say that I feel that the disease is tougher on the caregivers than on many of us patients.

Blessings on all the caregivers!!

Thanks again, and be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.

Veteran Member

Date Joined Oct 2007
Total Posts : 954
   Posted 7/6/2008 7:29 AM (GMT -7)   
Shelly, It is so good to hear from you. I think of you often and was wondering how you were doing. It sounds like you are doing well. I will pray for your sister-in-law. I can only imagine what she must be going through. I am doing well. Still trying to cope with my husband's encephalopathy. Otherwise he is doing pretty good. I am very thankful for that.

Thanks so much for checking in. I miss you. Take care and know that you are always in my prayers.
There is always hope!

Regular Member

Date Joined Mar 2008
Total Posts : 197
   Posted 7/6/2008 11:19 AM (GMT -7)   
Hi Shelly!!!

So glad to hear from you. I'm glad you are well and that your father is with your SIL. He must be a very understanding man. I doubt that anyone in my family would do that for me, except for my daughter.

I guess you read that Terry's tumor is now gone and the cancer is almost undetectable. The Nexevar must be doing it's thing. I just gave him a dry shampoo and scalp massage and it's also making his "long hair" fall out. He is sleeping better these days, but still has very little energy.

My mother is now staying with us. She is getting more used to being here and doesn't cry from being homesick as much anymore. It's so good to have her here and not have to do the long distance caregiving anymore.

As for me, I'm doing alright. Still behind in my paperwork as usual. Still starting too many projects at anygiven time. Some people might call it multitasking, I call it craziness. I figure that if I keep all the meds straight and the Dr. appts organized, I must be doing something right.

Thank you for all your help and support, Shelly.



Post Edited (Caregiverx3<1) : 7/6/2008 12:22:17 PM (GMT-6)

Regular Member

Date Joined Aug 2006
Total Posts : 469
   Posted 7/9/2008 4:39 AM (GMT -7)   
Hi Shelly

So glad that you posted. I certainly miss your knowledge, kindness, and insight. Things are going fairly well right now. I have decided to end my career after 25 years and am hoping that the lessened stress will help decrease my overactive immune system. Now I just have to decide what I want to be "when I grow up". Am so glad you are taking time for you, you deserve it.

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