hello to all,
i am still very new to this site but have really found out that there ARE people feeling and going thru the same emotions that i am expericening. this weekend was not great, my husband has not been feeling well at all. today was especially bad. my son, who is 13, called me today when i was at work and said that his dad was really saying alot of crazy things. my kids, 17 and 13, both know what this disease is doing to there father. this is so hard for anyone to go thru, esp. kids....but my kids have really had to grow up really fast in the past 4 months since he has just went downhill pretty fast. anyway i left work early to come home and my husband was actually being very hateful to the kids. seeing and hearing things that were not there. it's so hard to go thru this encephalopathy, it totally changes a person. anyway i uped his does of lactulose, w/o him knowing...(i mixed it in some gingerale) the first time he tossed it out and then the next time he actually drank it. boy, this is really something. he absolutly HATES taking that medicine... our dr's are getting hospice involved. i should be hearing something back sometime this week. i don't know exactly what that is going to involve, never had to do this with anyone before. you know, what really bothered me the most about today was that he was swinging at our son and trying to kick him...he had fell and my son was trying to help him up, but of course, not to his liking....my husband is the most humble and gentle person in the world, wouldn't hurt anyone, and to see him like this is just unbearable. he is sleeping right now so i hope we will get some sleep tonight..the past few nights have not been well. he has not been sleeping good and he is starting to complain about pain...he also has severe muscle and nerve damage due to diabetes...diabetes is also what the cirrhosis came from. the dr's are saying that the cirrhosis is making the muscle and nerve damage worse...i think that is why he can't walk on his own now. well since he is sleeping i am gonig to wash dishes and go to bed. i sure have been thinking of everyone on this site that i have been able to read about. you sure have helped me out just in the short amount of time i have been on. again, please continue to think of me and my family and i will do the same for yours.
oh, also wanted to mentioned one other thing. he is not wanting to eat...i really can't get him to eat anything but jello...i guess this is normal, huh? he had lost weight, but more than that just muscle mass. he looks to me like he is going to be just bones before long.
well talk to everyone very soon.
thoughts and prayers to everyone.