La Bunna, I am so sorry this happened to you guys! They had this exact situation on Hopkins last week, only it was a heart. So it does happen. It's disappointing, but also comforting to know that they won't put anything substandard in your hubby's body. Next time around, I wouldn't call any family members/friends until he is at least in surgery, or better yet--after the liver is in--except for someone you may want to wait with you.
This is actually good news. It means he is up at the top of the list, and you could get another call today or tomorrow. That's what happened on Hopkins. The family had not even gotten back home yet, when the hospital called and told them to come back. The second organ was fine and the transplant a success.
Big hugs to you,
La Bunna, you guys hang in there! It will happen--and soon!
LaBunna, I just can not believe that happened to you. Did you know you were even at the TOP of the list? I actually read that it does happen a lot. It was in some of the books they gave us at Vanderbilt. Also on the positive side. I have read where many people at the top of the list are in the hospital being kept alive until they receive a liver. Sometimes are within hours of dying. I know its hard to hear but I go along with Pink Grandma. You will get another chance since your hubbie is still able to be home. One thing that might make you feel better. Check the numbers on how many liver transplants are done at your hospital. That will give you an idea how many livers are transplanted per week. Also check the odds on his blood type. Jerry's blood type is O so he will have to be in the 20's before he gets to the top because A and B can both have an O. But O can only take an O. But on the positive there are more O's. I'm sure I didn't make you feel much better but maybe for one minute it took your mind and body out of the panic mode. I don't know what I'm saying to you. I would be hysterical. Just stay calm and keep those bags packed. It will happen.
JoAnn, it's interesting about being O positive. I am, too, so I guess if I ever need a transplant, I'd have a wait, too.
LaBunna, My husband was one of those on life support waiting on a liver to come in and he did get a liver within hrs of dying, but he DID get the liver. I'm sorry the liver wasn't OK, but it's so good that they do all the testing. We had a lady called in while we were there and they had her almost prepped for surgery and called it off because the liver had Hep B in it. I think I was more upset than they were. We saw them a couple months later and she had got the transplant and was doing so much better than my husband was. Don't lose hope, you may get a call anytime, just keep you a bag packed. Good luck.
I want you out of your slump right now! We all need to hear from you to make sure you are OK. Your hubbie needs you to keep him UP. Just reach down inside yourself and get going. After this is over he will make it all up to you by just being alive. And, maybe a new car or a trip around the world. One you can take your dogs on! Write and let us know how your doing. Did you do the research on Transplants done at your hospital? Keep us posted. Everyone is praying for you and hubbie.
La Bunna, thanks for checking in! You know we are all hoping and praying for you, and I personally have crossed everything I possibly can. You WILL get that call again soon! (The Power of Positive Thinking.)
YEA! I went back and read my explanation to you about there being such a low number. Sometimes I have no idea why my brain works the way it does. I'm just glad all is well! I loved your decription of working. That is exactly what I do from day to day. Just going from room to room. I sure hope our minds get back to normal (whatever that might be) when our hubbies have their new livers! One positive occurrence for you Today. Keep trying to do some work. Its good for you. If you're afraid of your driving (I have reached destinations and not remembered driving there) call a cab! Hey, maybe I will have one positive occurence today! YEA, I'm already excited.
Hey, LaBunna! I have been in your position and know how very difficult it is to even "maintain" when you are under so much stress. Here's hoping it won't be much longer! Keep trying to "turn it over" to your Higher Power, re: the transplant, whenever you find your mind drifting to that. It is not in your control. Your business is.
I'm pleased to read the new stats. Much more encouraging, for sure! I will rev up the positive energy for you a notch. It can't hurt. ;)
Well, that's so obvious it makes me feel rather stupid for not thinking about it that way. However, I would still be encouraged that he is somewhere near the top.