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Regular Member

Date Joined Jul 2008
Total Posts : 20
   Posted 7/28/2008 9:54 PM (GMT -7)   
sad  Hey everyone,
i wanted to give everyone an update on Lee.  Today was 3wks that hospice has been coming in.  he is still in and out, per say....pretty confused when he is in.  yesterday was the first day that he has never recongized me...that was unexplainable.  i know it's not him, this dreadful disease.  anyway, at this time we are dealing w/blisters on the back.  not sure what that is coming from, i was worried about it being bed sores, but i really try to get him to move when he is alert...the gentleman that comes and bathes him says that for some reason patients get them, they don't know why...i have sheets on his bed...i kinda wondered if they were coming from those blue pads you have to place under him...
at this time his urine is complete blood.  the nurse didn't come out today so the same man called the nurse to ask why this was going on.  there is a good chance that his blood is not clotting properly...i don't understand this...anyone have any suggestions???
the nurse will be out tomorrow so i guess i will ask her about it.  the brievement (spelling) counsler came out today and spoke with the family..i don't really know how much help she will be for me...maybe she will do good for the kids.  i still just don't know how to handle this.  my heart breaks everyday looking at him and telling him i love him fifty million times.....
oh...since the confusion has really set in, one thing has stayed on his mind...we are going to renew our wedding vows.  i tried to get him to do this 2yrs ago since that would have been our 10yr anniversary but he didn't want to...for some reason he brought it up on saturday and hasn't stopped talking about it...he told his sister he had $100 in his wallet and for her to go and get me something, when i got his wallet all that was in there was a $10 bill...i guess that was what he was thinking about....anyway, it's going to be really informal and probably not alot of people but that's fine..we were going to do it saturday but my sister-in-law said we probably need to do it sooner since we don't know what day to day holds...guess i will let you know how it turns out.  i can't express how thankful i am to have found this site.  i appreciate everyone's feedback and comments, thoughts and prayers.
i will get back on soon with another update.
hope everyone is doing well,
thoughts and prayers from,

Veteran Member

Date Joined Oct 2007
Total Posts : 954
   Posted 7/29/2008 4:01 PM (GMT -7)   
Hi Michele, Thanks for keeping us updated. That is so sweet of your husband. I will pray that you have a good day the day you renew your vows.

You are in my thoughts and prayers.
There is always hope!

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 7/29/2008 9:15 PM (GMT -7)   

Michele, I am also glad you updated us, and hope your husband will be alert enough to renew your vows.

As someone who was bedridden for a couple of months, I can tell you that the skin becomes very sensitive and easily irritated.  Yes, those blue pads can cause irritation.  The best thing is to change his position often.  I also loved to be rubbed down gently with mild lotion.  That felt so good and helped a lot.

Please keep us posted.

Big hugs,


Regular Member

Date Joined Aug 2008
Total Posts : 131
   Posted 8/7/2008 4:06 PM (GMT -7)   

God Bless you and your husband. I pray that your husband will be alert enough to renew your vows. Take care of yourself as well


New Member

Date Joined Jul 2008
Total Posts : 15
   Posted 8/8/2008 7:49 AM (GMT -7)   

Thank you for the update. May God hold both you and your husband in His hands as you walk through all of this. I hope your husband will be well enough to renew your vows. Please take care of yourself in all of this also.

Love and prayers
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