living with it

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New Member

Date Joined Aug 2008
Total Posts : 1
   Posted 8/18/2008 11:44 PM (GMT -7)   
Found out i had hep c in 2002.... what a whammer.... I thought this sight was for hep C people... people who have hep C...
it sucks... there is not a day that goes by that I don't think about the ramifications of Hep c on my daily lifel....I must probalbly think about it at least 25 times a DAY.
Well..... I figure the best I can do is..... monitor all my liver functions (which is every 6 months)  by the way every six months I have a liver ultrasound and blood test... It is called the fibrosure test and they can keep a log every time you have the test (which is usually every 6 months) and compare to see what the tests reveal... By fibrosure.... it means the liver stage, basically , 1, 2,3, or 4  and there is another test which tells the cancer level. ( if any), also 1, 2, 3, or 4.  This blood test also keeps track of your viral load.... THIS is VERY improtant also.
You have to have faith in your doctor.. If you don't feel comfortable with him, then... find another...
I have done tons of research on Hep C and I am encouraced but also, very dissapointed that they have yet to find a cure...
Maybe I am on the wrong site.... but if I get one singel reply ( hoepfully a positive one) I guess it will make me smile.
Thanks for listening.  

Regular Member

Date Joined Jan 2008
Total Posts : 29
   Posted 8/19/2008 7:49 AM (GMT -7)   
Hi Dabba,
Welcome to the healingwell forum. I just found out in Dec. 2007 that I have Hep C. I have had a biopsy and it showed that I have  very minimal damage to my liver, actually only a little imflamation. It is thought that I got hep c in about 1982 so I feel as if I am doing pretty well.
I hope that you are doing well also. I sounds like you doing the right things by going for your check ups and test regularly.
 Well Just wanted to welcome you and hope to hear from you again.
                                                           take care,

Regular Member

Date Joined Mar 2008
Total Posts : 202
   Posted 8/19/2008 9:10 AM (GMT -7)   
Hi Dabba,

Just a note to welcome you to the forum. I'm sorry that you need to deal with this disease but there are a lot of knowledgeable and caring people here. I hope you find it as helpful as I have.

I've had Hep C for 30 years. Found out in '78 when they called it 'non A, non B' and were totally clueless. My MELD is 14 and I just went active on the transplant list. I've had Hep C so long that my spleen is very enlarged, causing low platelet count, so they cannot treat me for the Hep C. The Interferon would diminish my platelet count from 'dangerously low' to 'spontaneous bleeding'.

Anyway, I hope that you find what you need here. If you think that we patients have a difficult time, read the past posts from caregivers. What they deal with makes our path look like a day in the park.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 8/19/2008 5:41 PM (GMT -7)   

Hi, Dabba, and welcome to the forum!  I have chronic active hep C, diagnosed in '93.  Like you, I was having regular blood work and ultrasounds, and the only symptom was extreme fatigue and elevated liver enzymes.  However, in 2005, an ultrasound showed a very large cancerous tumor in my liver, which had metastasized to the inferior vena cava.  I went to Mayo and they saved my life through treatment and surgery.  That was in May '07.  I have been cancer free since then, living on just the left lobe of my liver.

I'm disturbed by how often you think about having hep C, considering that you've known for 6 years.  Have you had any treatment?  Some people are totally cleared of the virus with treatment.  Do you take care of your health, with no drinking of alcohol, and eating lots of fresh fruits and veggies?  Also lots of water!  Yes, the fact of hep C is always in the back of our minds, but personally I don't dwell on it or let it keep me from living my life.  The only time I really focus on it is when I'm on this forum or I see the hepatologist.

We're like diabetics--it's a disease and we treat it as best we can, but don't let it stop us from doing things we want to, if we are physically able.



Post Edited (hep93) : 8/19/2008 6:44:04 PM (GMT-6)

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 8/19/2008 10:45 PM (GMT -7)   
Hello Dabba and welcome. Glad you found us .........and yes you found the right forum. I am sorry that you have this disease. It is not fun but like Connie said you take care of your self the best possible and live your life as fully as possible. And as you see with John can have a long full life.

It sounds like you have a lot of knowledge to share. Looking forward to more of your posts.

Take care and welcome again........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

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