Joann had requested an update on hubbies progress... so here it is:
He is doing "OK". Not great (like in the hospital) just OK.
He hurts very very badly. His right side is just throbbing pain. Even the pain meds don't dull it. He isn't sleeping and has no appetite.
So, after being the "WunderKid" at the hospital - here at home he is "Mr. Average". The healing is going to take a long, long time.
All the professionals (surgeon, home nurse and home P/T) think he is doing very well. They have no concerns about him and the surgeon has even REDUCED the number of anti-rejection pills he takes each day. Which is SUCH a positive!
But, now let's talk about attitude. His is rotten. He is crabby, crabby, crabby, and picky and whiney and impatient and the list goes on. Why? OK... number one is because he is in pain. No doubt. But, number two is because he thought he would come home and sit around a few days and then be 'back to normal'.
And that is NOT happening. This healing process is going to take months. He was thinking a week or two. (Hello? A week or two?)
So, home life is tense. I am - as we all discussed - carrying the entire household load. And my (self owned and operated) business is back, demanding my time and effort. And I am stretched to my limit. Physically and mentally and just plain old "time-wise"
We have had quite a few 'words'. Sorry to say that, but I am giving you a true representation of what goes on after transplant... at least in THIS house.
After going thru all I've already gone thru for the past 6 years of this illness, (and those (2) horrible years of interfuron experiment treatments), I am CERTAINLY not going to "give up". But, then again, I am also not going to "shut up". Because I have something to say, too.
Hope you all don't think I am a witch. He is a poor suffering and hurting guy. And I know this. But, sometimes enough is enough. And sometimes childish behaviour needs to be addressed.
Ugh. I , too, wish this healing period were only a 'week or two'!
I know that many of you out there can no longer drink. Neither can hubbie, obviously. But I have had a few this weekend. Thank Goodness for red wine!
So, there you have it.... the latest news 'fit to print'!!!!!
"Courage is the art of being the only one who knows you are scared to death"