Penny, I'm in Jacksonville and was initially going to Shands here for all my care, as I had no insurance. When I was diagnosed with HCC, I had a terrible time getting an appt. with a GI doc and never did get one with a hepatologist or oncologist. I think they considered me a lost cause, and the lack of medical insurance probably also had something to do with it. What I got was, "We're so sorry." I thought I might need a transplant and I made my own appt. with Mayo online. I have been with them ever since, and they saved my life. I didn't qualify for a transplant as the cancer had metastasized to the inferior vena cava. However, they did do chemoembolization and also put me in a drug study...this combination worked to shrink the tumor and the metastasized part back into the main tumor, so I was able to have life-saving surgery. Fortunately, I had just gotten Medicare when I first went to Mayo. I also qualify for their charity program, which picks up any fees that Medicare doesn't cover. I have never received a bill. Every year, they reevaluate me for this, and every year I'm accepted.
I know that Florida Hospital in Orlando has a good reputation. I hope they will be able to help your husband. Although I had a number of scans and blood work done at Shands, and had all the records for Mayo, they still put me through their own battery of tests. I am still scanned and have blood work about every 3-4 mos. Shands also made a mess of bilateral hip replacement surgery and a revision on the left. I had to have another revision done on the left at Mayo, which fixed the problem. I will also need them to do a revision on the rt. hip down the road, but am holding off until the pain becomes bad or it starts dislocating. When I saw my ortho surgeon at Mayo in Oct., he said if he had done that work he would chop off his hands--that's how bad it was!
I will be following your posts with interest and my prayers are with you and your family.
"But that was yesterday, and I was a different person then."
Alice in Wonderland, Lewis Carroll