Hello Lynn and welcome back. I am sorry that your brother has this disease. It's going to be a long hard row to hoe.
I'm sure you know that each patient is different and so it's very hard for anyone to guess how long someone has......even the doctors. There's too many factors to be taken into consideration. I can only tell you how long the progression took my husband.
When I first married him in April of 1999, the doctor diagnosed him with cirrhosis. I asked him the prognosis then............according to him he said from time of diagnosis of cirrhosis... that the average is 5 years. My husband was a big beer drinker and he continued to drink until his first encephalopathy episode in Jan. of 2005 . He stopped cold turkey. November of 2005 he developed liver cancer. After a chemoembolization in May of 2006 he started having seizures, then a mild stroke in November/December of 2006. He died in April of 2007. So I had him an extra 3 years then the average. One other thing. My husband was diagnosed with Hepatitis C before he met me. But it was undetectable by the time he met me. I am certain that if it was still active, his life span would have been even shorter.
He was on Lactulose,Xifaxan,Lasix, and Aldactone which he took as directed for the most part. Sometimes it was hard getting him to take that nasty o'l Lactulose. He also took a multi-vitamin without iron and magnesium,zinc sulfate, and vitamin A. They gave him Keppra for the seizures and Protonix for his stomach.
He experienced the encephalopathy, itching,nose bleeds, coldness, edema, ascites and the infections that liver patients usually get. He got varacies banded in his throat twice before they started to bleed.
He finally made the transplant list in Jan. of 2007 only to be taken right back off a few weeks later. (His cancer multiplied too much and his tumors grew too large by then.)
I hope this gives you some kind of idea as what may happen.
Take care.......thoughts and prayers..........
When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.
Post Edited (Pink Grandma) : 4/2/2009 4:16:12 PM (GMT-6)