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jilly girl
New Member

Date Joined Apr 2009
Total Posts : 6
   Posted 4/6/2009 2:13 AM (GMT -7)   
Thanks again for your reply, my husband is under Freeman hospital which is one of the best in england for liver disease, my husband has hep c and cyrosis. To be honest it is very rare he eats red meat any way but from now on he wont be having any. Thanks for all the advise. He is prone to get encephalopathy when he has an infection, this time it was caused from catching a sickness bug from our grand daughter. But to be honest i dont think the lactulose works very well for him and it is due to the fact he doesnt clear his bowels propley. Even though he takes 20 mls 4 times a day. So he has to go into hospital to have enama's to clear his bowels and get rid of the infection. What concerns me is this time there was no warning signs like previously. He went to bed on the monday night and when he got up on the tuesday he was away with the fairies. He had'nt a clue what he was doing or what he was saying. I had to dress him and he has had to be spoon fed and he has been soiling himself, which he would be devastated at if he new what had been going on. He totally lost all his facalties and all his co-ordination.Also this time it was 100 times worse than previous and it has took longer to treat. The hospital say it is because his liver is getting worse. I dread to think what the next one will be like if this time is anything to go by. My thoughts and prayers go out to everyone who has someone who is suffering with this as it is a very distressing and heart breaking time for all concerned watching someone you love turn into a small child in a matter of hours. x x x

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 4/6/2009 8:25 AM (GMT -7)   
Hi Jilly, It very well maybe that his disease is progressing.

Lactulose does not work on infections. It rids the body of the ammonia that causes the encephalopathy.

Does his doctor have him on any type of antibiotic continuously, as part of his daily meds? They put my husband on Xifaxan for about the last 6 months. Between the Lactulose and Xifaxan his last 6 months were almost free of encephalopathy.

Patients who are in and out the the hospital a lot are good candidates to acquire that highly resistant staph infection........MRSA. My husband got it and that is why they have to put him on maintenance antibiotics. With the Xifaxan his last 6 months were pretty clear headed. You may want to get your husband tested for MSRA. If he has it would make it seem like the Latulose is not doing it's job..........

Thoughts and prayers................
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

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