I have not posted in a while, but have been checking in. Quite frankly the last couple of months with my hubby have been a very bumpy road. After his issue of being neutropenic in March, he has had a severe headache that has NEVER gone away! So, a few weeks ago, he started havin seizures, so we now have yet another specialist in the mix (a neurologist, and the jury is still out on him). I have had to repeat to this man several times about my husband's liver disease, tell him about problems with meds, etc and either he does not write it down or just could care less.....sorry that was mean! At any rate, he has doneo MRI with and without contrast, CT scans which show nothing, and most recently an EEG which we are waiting for results from.
So, today I get home and we have a letter from the social security office, and his SSI benefits (as little of a monthly amount that we were getting) are being discontinued effective 6/1/09 due to the fact that my income is "too high". HA!! I could get on a whole soapbox about what a joke that is, but we won't go there. So, I can probably cut more corners and go without the $200 a month we are getting....BUT this also stops his medicad benefits which leaves him with NO insurance, and quite frankly we are completely freaked out over this!! The very minute the transplant center gets wind of this, he's taken off the list until insurance issues are cleared up. The other side of that is I could add him to my insurance at work....but, after taxes and insurance are taken out of my pay, that would literally leave NOTHING to bring home to live off of!!! SO, I have no idea what to do, where to turn, etc.....this is so upsetting! I will, however, call the social worker at the transplant center in the morning and see if she can step in and help me wade through the waters of appeals, etc......sorry for the lengthy message, I just needed to vent!!!