Haven't checked in for a while

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Veteran Member

Date Joined Aug 2008
Total Posts : 613
   Posted 6/26/2009 9:01 PM (GMT -7)   
Hello, all!! I have not checked in for a while, but I do think about everyone here daily. I have had my hands full dealing with the medicaid issues, etc for my husband. He lost his ssi/medicaid because of my salary effective 6/1/09. So, of course that set off a whole chain reaction of events....mainly getting him put on inactive status on the transplant list- Ughhh! After much fighting w/ medicaid, and the state buy in or spend down program, I finally made the decision last week to just add him to my insurance through work. This was a very scary step for me, because the cost to do that will leave with almost nothing to live off of! VERY frustrating! So, now he has my blue cross/ blue shield of TX plan, and we are trudging forward. I am in the process now of trying to find a DECENT primary care doc, etc, getting him put back on the list, etc. IN the meantime, his health is just in a steady "yucky" state. Not any better, not any worse...with the exception of us getting the seizures under control. He mainly sleeps all the time. Have not had any bloodwork done lately, because of the insurance crisis....but, that will be one of the next appointments I make now that I have all that cleared up. He is cranky most of the time, so I am trying very hard to not take it personally.....it just gets old listening to the same whining and complaining on a daily bases........so, I am planning a trip to GA at the end of July with a small side trip to the mountains of NC for a day or two.....a much needed break for me. I have not had a "vacation" in about 5 years....this August will also mark the 5 year mark for when my husband was diagnosed. I am to the point that I am just tired! Tired of this disease, tired of all the stress and the toll it has taken on my household. So, thinking the vacation is in order.
Sorry, guess I just needed to blow off some steam and whine a bit!!
Hope all of you are doing well......

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 6/26/2009 10:03 PM (GMT -7)   
Hello Mer, so glad that you were able to check in. Don't be sorry about needing to vent. Sorry about your husband losing his health insurance and you having to add him to yours. It kills me that a person can pay into Social Security and the medical side all their working life and when they need it..... the government puts up road blocks so that they can deny you the benefits. A similar thing happened with my husband.........we didn't need the medical .........we needed the money ........and he was approved, but I made too much money for him to receive any. I was furious...........it doesn't make any sense to me..........they will give all kinds of aid to foreign countries but they can not help out their own citizens.

I am glad that you are able to get away for a while. It should help you out a lot.

Take care.......thoughts and prayers.........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 6/27/2009 11:50 AM (GMT -7)   

Mer, it is so good to hear from you!!  I think you did the only thing you could do...put him on your insurance.  I agree that you definitely need to "get away from it all" for awhile!  It will do wonders for you.  You know, this type of insurance situation is the very reason we need reform.  I understand that every day Obama's sec'y picks out half a dozen letters for him to read personally.  Perhaps you should write to him about what happened.  He apparently likes to know these things.  I watched his Q&A on healthcare that was on TV the other night, and I'm cautiously optimistic.  Situations like you and your husband just went through should not be allowed to happen!  Not when someone is on a transplant list, for the love of God!

Have a good vacation and tell us about it when you return!



Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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