Very concerned about meld score

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Regular Member

Date Joined Jun 2009
Total Posts : 30
   Posted 7/20/2009 3:19 PM (GMT -7)   
     Moonroe here, My husband was back in the hospital last Wed. His lab work was all out of wack. Apparently his sodium levels were way to low and they were concerned about his Kidneys. Well ,he came home Sat. and had to go back today for a follow up with his gastroenterologist. The labs looked better except his billirubin was way high and I did notice he was very yellow. His doctor says with the labs the way they are now his meld score is 21.I do understand that meld scores go to 40 and usually someone with acute liver failure can go that high,but is 21 high for someone with chronic liver failure. He says that we are at a critical point now and he wants to get the tests at unc started now.Especially the cath to find out about the portal pulmonary hypertension,and get him started on medication for that. THey made an appt for tommorrow for the cath.and said he might have to stay over.I am not sure what for. Husband has been very weak past 2 days and confused more than usual. They have taken him off Lasix and aldactone and propranalol.The only thing he is taking now is Xifaxan. I am afraid he will need fluid drawn off more often now that heis not taking any diuretics. They took off 7.6 ltrs on Friday in the hospital,but it looks like it is filling up again.I seem to get the impression that things are not looking good and that they need to hurry up and get this stuff done.It is really scaring me and him also.He is nothing but skin and bones.I have him drinking ensure and he eats a little,but not enough to keep a bird alive.I wonder how much more of this can his body take,before it just gives up.I think the human body is stronger than we give it credit,but this is ridiculous.I am not sure if I have questions or if I am just talking to get it off my chest.Anyway,it helps me to get through all of this to put it inwriting. Thanks everyone for listening.Mimi

Veteran Member

Date Joined Oct 2007
Total Posts : 502
   Posted 7/20/2009 5:10 PM (GMT -7)   
Mimi, I am sorry to hear that your husbands condition has deteriorated in the past few days. It is so hard to watch and feel so helpless. There is a medication that doctors sometime Rx to increase appetite. It's called Megace. Maybe they would consider giving him the Rx? He will probably need the fluid drained again. The pulmonary hypertension is something that needs to be treated immediately so I an glad they are being aggressive and doing something about it right away. Has he had the TIPS proceedure? Are they considering it if he hasn't had it done? There are risks involved but it may be the one thing he needs to reroute the fluid and reduce the pressure. Keep posting and let us know. GOD Bless

Post Edited By Moderator (hep93) : 7/20/2009 8:07:33 PM (GMT-6)

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 7/20/2009 7:10 PM (GMT -7)   
Mimi, I agree with Shelly that it's a good thing they are acting quickly and aggressively.  They may want him to stay overnight after the heart cath just for observation and to make sure that he is okay before releasing him.  Every invasive procedure has risks, however small they may be.  With someone as ill as your husband appears to be, they are being cautious.  It seems to me that they are doing a very good job.
I hope you can get some rest tonight.  Please do keep us updated.
Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Regular Member

Date Joined Jun 2009
Total Posts : 30
   Posted 7/21/2009 3:23 AM (GMT -7)   
Hi,I have already asked about the tips surgery.His doctor said because of the heart issue,absolutley not,He also has a naval hernia and we watch it closely after every paracentisis.Thanks for the response and I will let you know how the visit to unc goes today.I am praying they can fix the pulmonarty hypertension. I dont think either one of us can take more bad news today, Mimi
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