Hi, Charlie. Good to see you posting. That is great news that Janie is going to be listed for transplant!! I know at Mayo here, they seem to try to condense 12 tests and doctor consults into 2 days and it is just too much for me. I live here...5 min. away from them...so am able to get them to spread everything out over at least 3 days, with a day in between to rest.
The caregivers are often as stressed and tired as the patient, as they are the ones left to deal with bills and life's everyday problems, as well as the demands of the patient and doctors. I know you have a lot of company here who can identify with you completely. Just try to get some time for yourself, even if just one-half hour. You have to recharge your batteries in order to keep going, or you will get burned out fast.
My energy level is always low because of hep C/cirrhosis, but I just had a major surgery and feel like I have zero energy right now. I really just want to sleep and be left alone. However, I force myself to get up and not sleep all day, making an attempt to get back to my normal schedule. I know it's a very long recovery, though, so I have to be gentle with myself and ask for help when I need it. Since I live alone, I do have to wash dishes, make myself something to eat, etc., whether I feel like it or not.
Feel free to vent here at any time. You definitely are not alone.
Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland