I understand your frustration. You have a lot of company here with that. Everything is based on the MELD score instead of how the person is actually feeling. There are some events/diagnoses that will raise the score...but of course the patient is desperately ill, too.
I had to apply for SS Disability at 60. I had only been able to work P/T since '93. It took them 2 yrs. to approve me. Meanwhile, my aunt supported me for over a year. I had to return to work the 6 mos. or so before I was approved, as she didn't think I would ever be approved, and it was incredibly difficult. Between the fatigue and pain, my focus simply wasn't there. Your wife is indeed fortunate to have medical insurance that will continue. Has she applied for SS Disability? Since she is a transplant patient, she most certainly would be approved. I understand that end-stage patients are now fast-tracked, too. Quoting from Child4's recent post regarding this:
" I was told from a financial advocate that on SSD applications if the individual that is applying is terminally ill, to put in the comments section at the end of the application "This person is a Teri case", and it usually gets the application processed more quickly. They will probably request a letter from the MD stating they have a terminal conditon."
I was not picking on you for your spelling, but feel it's important for medical terms to be spelled correctly to aid research and facilitate communication with medical personnel. I had a topic about correct medical term spellings. I will try to find it and bump it to the first page.
I'm glad that you found us. You will get so much support and information here! Please do keep us updated, and tell your wife that we are thinking of her and praying for her.
Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland
Post Edited (hep93) : 10/18/2009 4:49:04 PM (GMT-6)