Not a good week

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Regular Member

Date Joined Jul 2009
Total Posts : 192
   Posted 11/17/2009 2:20 PM (GMT -7)   
cry  During Janie's last hospital stay for severe anemia in October, she was diagnosed with an adrenal deficiency and prescribed 25 mg of hydrocortisone twice daily. This past Wednesday she went for blood work for the results to be ready for an appointment with her hepatologist tomorrow. The following day (thursday) I recieved a call from her doctor's office instructing me to take her to the hospital immediately for another blood test, as her blood/sugar (gluclose) was 800. I took her to the hospital and another test indicated it to be 689. She was admitted via the ER, and given a short acting insulin shot to get it down. We were finally able to go home last Friday night with a prescription for Lantus insulin, 25 units every night. Even with the insulin and eating properly, her blood/sugar still remains an average of 200 (higher after meals). The physician who treated her at the hospital lkast week doesn't think she needed be on steroids, and is recommending she see her primary care doctor for him  to wean her off of it. We have an appointment with her hepatologist in the morning to learn her new MELD score, and her primary care doctor tomorrow afternoon. I should have realized her constant thirst might be related to blood/sugar, but thought it was due to the increased dosage of lasix and aldactone she has been taking for aceties. Trying to manage her meds and monitor her health has got to be the most difficult task I have ever taken on. She is too sick to help me, and the harder I try, the more frustrated I get. This disease is just terrible, for the care-giver as well as the patient.

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 11/17/2009 5:01 PM (GMT -7)   

Charlie, I am so sorry to hear of the additional problems.  I do hope that things will be sorted out soon.  Unfortunately, in ESLD, new medical problems are fairly common.  Remember to try to take some time for yourself or you will burn out very quickly.  If Janie is at home, try to get some medical asst. care at home and some respite for yourself.

My thoughts and prayers are with you both.



Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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