I think it's good that you started a new thread, WG. Looking at worst case scenarios is just a way to prepare oneself for what might happen...and also to find out if anything can be done in those situations to improve quality of life. You know your mom wouldn't want to be on a trach, so now the decision must be made whether to take her off the ventilator or not. Some people will go ahead and live for some time; others will pass away within hours. It depends on the individual's situation. If anyone has concerns about her NOT getting a trach, make sure they know that it needs 24-hour care. They have to be suctioned. They get mucus plugs, which is a life-or-death situation. It's not as easy as just having a hole in your trachea. Make sure they know that. Have a nurse explain it to them. If she is not showing any improvement and not responding, would they want her to live like that, on machines? Would SHE want that? These are the things that must be decided.
I hope you can work around your schedule at work; otherwise, to save your job, you may need to take Family Medical Leave.
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