Rick, Dougs stint was in for a couple of years before they had to unplug it, the procedure involved them inserting something into it from the vein in your neck and it was just day surgery. no stitches or anything like that and it was usually done in radiology. You will know when the flow starts to become blocked as you will start to gain fluid again. At that point they do an ultrasound and check the flow. Sometimes they will just do a Tap if there is a good pocket and alter your diuretics some. There is a risk of increasing ammonia levels with a TPS so they try not to open it unless they have too. I dont know how much to pass on as I dont want to scare you..... so you really need to be prepared for more info. Let me know if you want it all. I will pass on more of the things regarding TPS if you want me too.I am a person who doesnt like to sugar coat things but I also think people need to ready for info too.
As for Doug on the list he was 2nd on the list for New England, he got his transplant March 10th but in surgery there was too many complications, one of them involved the portal vein which is a criteria they are now trying to add to Meld scores to move people up faster. Because of this complication it took 100 litres of blood and the surgery went 3hrs longer than usual. His new liver was functioning when he was brought to ICU but there is a preservative in blood products and the new liver couldnt process them fast enough. At that point he threw a clot which they went in and removed as they never closed him up after the transplant due to having to do repairs on the portal vein, it is easier on the body to not close up if you know you are going back in..... long story short his other organs started to fail and he couldnt be roused when we took him off pain meds. At that point I called the kids and we spent time with him. I did use my medical POA to have the life saving efforts stopped. The little @#$* passed on Friday the 13th.
The true blessing was him not waking up even though I wanted him too. His last memory after 10yrs was going down the hallway thumbs up grinning that he made it to his transplant.....he won and I can still see that face of his with the silly grin. The youngest daughter whispered in his ear You got your liver and your keeping it with you, she so made fun of him cause his e-mail was liverhunter at yahoo. That man laughed his way through so much..... even the night I found him in my garden at 3am naked as all get up, he would tell everyone that story. That was a sight to see! I coaxed him in by telling he did an awesome job in the garden and I needed his help in the house. I had learned a method called "fiblets" when dealing with my mummy and alzhiemers. We would have some funny conversations while waiting for the enulose to start working. I will have to tell you some oneday. He was just as funny when in a fog as he was when normal.
Rick, I think all your questions are answered in that middle paragraph--about things unfortunately going wrong after transplant. You need to know about the risks, but because every person is different, you can't assume that the same will happen to you. There are more successful transplants than not. My brother-in-law had a transplant about 10 yrs. ago and had various problems afterwards, but he pulled through and is doing well. It's so important for people with successful transplants to post here, but it doesn't often happen. We tend to hear about all the bad stuff here.
Rick, someone would have to pay me to correct all the spelling and grammar errors I see here and elsewhere on the Internet! It's all I can do to bite my tongue at times--or quiet my fingers. And believe me, it's not just you!
I love the positive stories. We need more of them!
Rick, Guess what I do drive of course not my mini I wanted but a VW beetle LOL and of course Doug got me the flower decals for the sides.... lol. My fasination with mini's is home grown I was born in England and every time we went home the little cars were just what I liked. Then I lived in germany and found the bug, they actually had VW races in germany similar to dirt bike races here now that was fun. I used to work on my own cars but now if I get on the ground I have to do inventory to get up lol, so I have a mechanic that yells at me for owning a bug lol lol. My grandson thinks the bug is a fresh ride! I did have a 1972 Buick Gran Sport, dual exhaust, posi rears the last of the muscle cars now that was a screamer I could leave 2 telephone pole lenghts of rubber, those were the days ****!! Loved the sounds that car made, like when all four barrels opened up on that carb. Still gets me excited thinking about it okay so now I am in lala land.
As for Dougs Roto Rootering on the TPS yes it was done the same way it was inserted and they did give him a local with light sedation. He said it was no big deal when he had it done, the biggest pain was getting me up to have him in Boston so early. You see I am not a morning person, I think 4am is not a time to get up its a time to go to bed. I am pretty scarey Doug would lay in bed and wait till I had my first cup of tea made before he would show his face. He would smile and sing while I would grumble and mumble. So me in the am was scarier than any procedure they wanted to do to him.
OH by the way......I have lived in Mass for ahhh 37yrs but I also lived in Fla and Texas. I have family in Fla and SC oh and Arkansas. Also love my willie nelson, george jones, lorretta etc and throw in some Kid Rock Who led zepplin etc. So kinda like a redneck hippie yankee but no NASCAR!!!