Sorry if I made it sound bad...I'm actually pretty lucky. It was only super scary for a couple of weeks while they were trying to sort out what was wrong. I am lucky as I responded to treatment super quickly, granted I had sooooo many of the steroid side effects but they all go away when the dosage lowers, I don't have any fatigue or joint pain. There are some others who are on disability from their AIH as their fatigue, joint pain and/or increased affinity for acquiring flus seems higher. I think I have had one really bad cold since all this started...knock on wood as flu season is starting
Anyway, you can have fluctuating levels with mild AIH. They don't always treat mild AIH either. Do be sure you see a hepatologist if you can and not just a GI doc. Your rheumy sent you to a gastro but a hepatologist has extra training specifically in liver diseases.
Could the symptoms you are having be from the Still's? I was looking online about it and some of those are symptoms...