I was diagnosed 3 and 1/2 years ago with cirrhossis. In December of 2006 I had to go to the emergency room with bleeding that would not stop.
I was diagnosed at that time with ESLD and told that I probably would not be around long enough to get on the transplant list. I have been going to
UNC Chapel Hill transplant center for 3 years and currently on the list. I have been placed inactive due to high BMI. I am an amputee and cannot wear my prosthesis
due to swelling. I am bound to a wheelchair and spend much of my time in bed due to back pain from sitting so long over 3 years. My meld score has decreased since initial
assessment but still 12. I take the lactulose and dieuretics although I am unable to take enough to do all the job due to Kidney damage. For the first year, I had a paracentesis
every 4 weeks or so and drained 5-7 liters each time Once it was 12 and another 10 liters. It has been a long time since going for another drain as they indicated not enough
ascites to drain. I am larger than ever and suffer from a tremendous pocket of fluid and celluite in my lower abdomen. It reaps havoc on the scrotal area and is very heavy. Many times it gets extremenly hard. Doctors indicate nothing can be done due to my condition with low platlettes etc. I have tremendous pain in my shoulders knee and hip. I get cordison shots, 2 in one arm
to help with the pain. I have little strength left in my arms but they continue, as my abdomen, to increase tremendously in size. My doctors say I will not get better without a transplant.
I have little hope of getting my weight down as a sedentary lifestlye and immobility has pretty much overtaken me. Seems like I just carry on. Some days better than others but
most are a challenge. I have not had anything to drink for three years, but was a heavy participant for over 25 years. I am very lucky to have good doctors, good family, and a great church
to support me at this time. As I am unable to work financial planning is a must and, although we make it, it is a tough time far earlier than I had hoped in my career.
My lack of focus and fatigue keeps me from doing much online, but I do write and teach a Bible study weekly. It takes all I have to get there and to prepare, but it is well worth it.
I guess I say all this to be honest with those who are diagnosed. Yes, it is a hard road but I have a 3 year old grandson I have been able to see and love. I have three wonderful children
all of whom are now out on their own. I have a wonderful wife who has cared for me and continues to do so. I don't say I deserve it , but Grace is an extension of those whose
life is in order and accept the Grace of our God. I have always been a believer and shamefully admit my failures, but forgiveness is there waiting. Forgiving ourselfves is the hardest of
To all who read, please grant yourself a moment each day for quiet time and a simple time of prayer.
A Time for Quiet
I have a blog at ATQ@blogger.com if you are looking for help with that time.
God bless to all who are ill and the caretakers who are so caring.