I hate bumping old threads, but I found this one while searching around the internet today. I figured I'd sign up and share my story.
I was diagnosed with AIH in May of 2009. I only went in because I had flu-like symptoms for about
a month, and I noticed I was becoming very jaundice. My treatment started out with prednisone and immuran. I was on varying doses of those up until September 2012. At one point I was off of prednisone and on a very low dose of immuran, but that was very short lived.
In September, 2013, my liver numbers were through the roof, at 1500 and 600, respectively. That is nearly where they were when I initially went to the DR in 2009. My GI DR suggested I go to Mayo Clinic in Rochester, MN. Luckily, I live in MN, so that was an easy choice. I went down there for a good bit of testing to make 100% sure I had AIH and not something else, like Wilsons. Mayo conducted my third liver biopsy as well as a myriad of blood tests, unrine tests, and eye exams. Lots of poking and proding later, I was put on Cellcept. I've been on it now for about
3-4 months, and I'm tapering back my prednisone from the 60mg I was on when my numbers flared.
I'm anxious to be off of the prednisone for good. I hadn't noticed much for side effects of the prednisone until they put me on 60mg. I've developed weakness in my arms, and tremors when exerting myself. I wake up many times each night, and have trouble falling back to sleep. I used to be able to sleep forever and through anything. I've also noticed a bit of joint pain, specifically in my knees, ankles, and upper back. One of my shoulders has some pain, but I imagine that's still from my torn rotator cuff a few years back. One of the biggest things I hope will happen when I'm finally off the prednisone, is that my weight will come back down. I gained quite a bit of it when I was initially put on it, and I've never been able to get more than 10-20 pounds back off. I've even trained and ran a handful of 5ks last year, and I'm signed up for more of them this year.
Anyway, that's my story in a nutshell, and it's comforting to see that there are people dealing with the same things I am, and that Cellcept has been going well for you.
Post Edited (GettingOnWithIt) : 4/18/2013 2:33:44 PM (GMT-6)