My father-in-law is currently in the hospital with ESLD and is also in renal failure. He is experiencing all of the things that go along with this including hepatic encephalopathy, jaundice, fatigue, swelling in legs and abdomen, an infection they can't figure out, etc... He has been on dialysis for his kidneys, which is the only thing keeping him alive. His main Dr. as well as the case worker think dialysis should be stopped and he should be moved into the hospice unit at the hospital. I don't think he has a grasp on reality, no matter what he's told he says he wants to live. He seems to think that he'll get better and eventually get into rehab. In reality he's getting worse, he can barely sit up in bed and usually can't hold a conversation. His quality of life is terrible. My wife has medical power of attorney and is probably going to be forced into a decision very soon. He is very confused and out of it but he knows he doesn't want to die.
Does anyone have experience with stopping dialysis? The kidney doctor would rather keep him on it, but his kidneys are not improving and I get the impression he's just trying to keep him from dying from renal failure. It seems to me that while the dialysis may buy a little time, it won't be "good" time. Another concern is insurance, they won't cover dialysis in hospice. If he doesn't go to hospice they will discharge him and he has nowhere to go. Rehab won't take him because he's too sick and his insurance won't cover a nursing home. His home is in foreclosure, he can't got there, and we live a thousand miles away with no way to get him to our home in his condition.
Any advice would be greatly appreciated!!