I am a new member, although I have been"lurking" and posting occasionally. I hesitate to tell my story for several reasons. But, I so appreciate everyone being so open and honest here and this as been a great help to me. So hopefully this can help someone else.
I am 47, and was healthy until 2005. While on vacation I had a siezure. No cause dx., after extensive work-up. For the next 2 mo. i had throbbing HA's , nausea, and finally when i had trouble walking I went to the hospital (where i worked). DX. w/ bilateral subderal hematomas (brain bleed), had a craniotomy. Back at work in 6 weeks. No problems w/ labs. Then in 2006 I was sick, just sick. went to pcp, extensive labs done Bili very high. So, being fair, fat, and 40 had my gallbladder removed. in 2007. Everything has been down hill since. I had a MELD of 20, dx W/ AIH, hemolytic anemia and a lot of other AI diseases. I now take over 20 medications a day, plus procrit once a week. I did learn that general anesthesia can send a Bad liver down the shute. I didn't tell drs. i was a functional alcoholic forever. I have quit drinking my meld is now 9. I have gained 40 lbs. in 4 mo. am not yellow anymore.
As you all know, this has been a roller coaster. I did have one false call for a liver. Fought w/ the transplant coordinator over a required test, that pracically killed me the year before.(DSE), had a recent suicide attempt, and have been kicked off the list because of "depression"
I have a family, w/ 2 grown daufgters. I miss my career and friends like crazy, and am so glad i found this support group. Very Sincerely Ailsa