Hello all I am new here and I hope its ok to write about
liver cancer here I did not see a section for it. My dad was diagnosed in 9/08 with primary liver cancer. he had hep b when he was a child and has lived with cirrosis all of his life from it. He is not a drinker. He is 77 years old and is doing pretty bad. I live 2.5 hours away from him. I try to be with him as much as I can but have 3 kids and husband to take care of. I can relate to alot of the posts on this forum and want to thank you all for your information and helpfulness. When my dad was diagnosed they gave him 6 months its been almost 18. He refuses to give in to the diseases he has and I respect him for that. He had 1 chemo embolization, had many episodes of encelopathy, many trips to the hopital, put in a nursing home to die, only to be told after 45 days he had to go home there was no reason for him to be there. Alot of things come down to money and that really makes me sick. He has fallen a couple of times broke ribs got stitches in his head and last week broke his colar bone. He was prepared to die in the nursing home but didnt. His wish is to die at home. The problem is he keeps falling due to encelopathy or weakness in general. He has a wife and is on hospice care but they only come 2x a week. We all live in a diffrent state so its hard to be there for him. I struggle every day with not being able to be with him. His wife says she cannot handle him and put him in a nursing home last week. The nursing home is even farther than their house 3 hour drive. His wife is angry at him because of his behavoir and I try to explain to her that its the disease not him. She doesnt even go to see him every day. He is on lactulose and a million other things so I know all about
the violent diahreaha (thats what my dad calls it) He was on pain meds last week for his collar bone and kinda slipped into a semi coma. I thought that was it. I sat by his side for two days praying for God to take him before he had to go to a nursing home. He rallied back and is walking and alert
again, but stuck in a home (a really gross one too) We dont have money so its not an option to put him in another one. Now his wife wants to take him off all meds, he told me last week he was not ready to give up. What do I do she has the control, I love my dad I dont want him to suffer but he is not ready and should not be forced to give up his meds. Sorry so long! i appreciate any feedback.