Welcome to the forum.
I see you are caregiver to a Hep C patient who is pretty far along in his disease.
The Heptatic Encephalopathy can be awful. I know, as my partner, Mike, was loonie for months before we got the right medications organized. It took 4 hospitalizations before we got the combo of Lactulose and Xifaxan in him. And he was CURED the morning after transplant...mental status returned to normal. Of course he has amnesia about the year before!
Until the meds, he was sleeping all the time and a bear to be around when he WAS awake. Nasty and oppositional much of the time. And a true loon. He couldn't remember from one moment to the next what he had wanted or decided and I was pretty much the whipping post for a while there. I think I cried a river, personally ended the drought in Florida with my tears.
You have posted on the right forum for patients and caregivers of folks with advanced liver disease, but you'll get more response if you start a NEW TOPIC and explain his situation to us.
When he got Hep C, his diabetes situation, whether he has tried a treatment. Whether he is seeing a hepatologist at a major medical institution. Whether he is drinking alcohol...which will mess him up more and will make him ineligble for transplant (Hep C is one of the number #1 reasons for transplantation in the US). Those with alcoholic liver disease, with our without Hep C have to be 6 months alcohol free to be considered for transplant.
This is going to be a rocky ride...either to surgery or death. Your hubby has a really bad disease.
There is some educational material and links at the top of this forum, take a look.
And come back, tell us how he is doing. And you can post how YOU feel on the Caregivers' Thread...when you just are at your last nerve...post a rant...we can take it! Most of us have been there....
Post Edited (MamaLama) : 5/13/2012 5:21:50 PM (GMT-6)