Ranbrew, I completely agree with PG. If the transplant center is ready to list him, let them. They will not proceed with transplant unless he gets really bad, but that could happen quickly. If he has cirrhosis, that is not reversible. It can be halted or slowed, but not reversed. Also, anything that is just going into trials will not be widely available for some time. I wouldn't recommend him trying to join such a trial with a MELD of 22.
I suggest that he apply immediately for SSI. If approved, he will also get Medicaid, which should help with the bills. You should also go with him to his next appt. at the transplant center and ask them whatever questions you have. You can also look into whatever charity help they might have at the center. See a SW there, not the financial people.
Your son is lucky to have your support. Many don't have any type of family support.
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