Sorry it took so long to get back but all this has really taken a toll on me already and I know we have a long way to go!!
We saw the GI dr on Tuesday and had the ultrasound, US didnt show any abnormalties other than an enlarged liver which is not uncommon with this disease. I was not impressed with this dr as he couldnt answer any of the questions I had!! We did find out that my dad has hep c and cirrhosis which didnt surprise me since its not uncommon to have both. I did ask the dr what stage of the disease did he think we were at and he says stage A, although when I asked if it was common to see ammonia levels of 420 in stage A his reply was "no, we normally see these levels in stages B or C"!! I asked about
seeing a hepatologist and he said sure I can refer you to one but I think its too early right now to see one! Can it really be too early to see a hepatologist? I would think not!! The nearest hepatologist we can see is 3 hrs away and my dad has refused to go this far and is even denying the fact that he now has cirrhosis too! I'm sure his reason for not wanting to see a hepatologist is he knows he will have to give up the alcohol and he hasnt made up his mind to do that yet!
He is scheduled to have an EGD done next Thursday to check for varices. I really dont think he understands how serious this disease is as he has chosen to continue to drink! I'm really not sure what to do next, I feel like my hands are tied and despite the fact that my sisters and I have tried to explain all this to him it seems as tho he has his mind made up. I really dont know what else to do!
Thanks, worried for the reply. So far no fluid build up but im sure its just a matter of time before this starts happening!! I have done my research on this as I am a nurse but nurses have questions too
(my specialty is trauma)
frustrated and sad,