I can certainly understand your frustrations. Last fall my wife also developed lesions on both sides of her tongue, and was in a lot of pain. We went from an Ear/Nose/Throat Specialist to a Dentist, and then to an Oral surgeon. The surgeon took biopsies that were benign, and then surgically closed the lesions. As soon as the stitches dissolved, they opened up again. This all started in October, and her tongue has just now healed. She also developed Type 1 diabetes last year when she started taking hydrocortisone, and is now twice a day insulin dependant. We now has an additional doctor thrown into the mix, an Endocronologist, however her A1C the last time it was checked was 5.6. I’m told they won’t transplant if the A1C is 8 or higher. Luckily her ammonia is under control with “Kristilose” and she hasn’t had any fluid build-up in a year. Her main complaint is fatigue, dry mouth, and dry eyes, and an occasional bout of nausea. Her regular Hepatologist, who was a very nice and caring lady had to take an extended family medical leave, and the one she is seeing now has the bedside manner of a dead fish. He may be competent, but is very abrupt, and doesn’t seem to have the compassion as her other doctor had. She went through the testing process in March with another hospital here in the Dallas/Fort Worth area, and we are waiting for her case to be presented to the transplant committee. If they select her as a patient, she will be dual listed in both cities, as opposed to only Dallas now. Like you, I have been reading posts from this site for about a year now, and have gotten tons of useful information. When I think I can take no more, I read of someone who is having a much more difficult time than we are, and count our blessings. Take care and thanks for the post.