I spoke to my nurse, Teresa, today and she said something to the effect of, I have severe inflammation that is causing something to happen but they don't know what. My liver blood test came back fine, thankfully. They have thrown out the name Crohn's disease.
I'm going to have the biopsy today OR, perhaps, the doctor will put it off because I'm scheduled to have a colonoscopy now and also a scope down my throat. I figure he'll probably do all at once. So, we'll see.
It's just so weird to not be eating hardly anything to keep the bad pain away. I'm getting weak and I'm beginning to see this is the beginning of the rest of my life. A few weeks ago that would've scared me but, now, as weak as I am...I have a peace about it all. I don't have the energy to be afraid anymore.
I have a friend who has a lot of the issues I have plus she was just diagnosed with Barrett's. She has tubes in her belly and cannot evacuate. If she wants to eat a real meal, she has to get rid of it before it tries to digest. Her name is Carla and she weighs about 85 pounds. She is so amazing. She can be in pain yet pull out her guitar and sing, "Why me Lord, what have I ever done to deserve all the blessings I've known..." She is such a trooper and inspiration.
I'm not so inspirational. I've gotten pretty quiet lately and it seems all I do is fall asleep while watching movies. I can't imagine what my husband is going through but he is extremely supportive.
I didn't mean to get off on the emotional aspects of being ill but I figure all of you understand the day to day of it and what it can do. Thank you for the reply. I'll let you know what's going on as soon as they tell me.