Holmes, what are they doing about the tumor? Do they think it's benign? I honestly know where you are coming from. When I was first diagnosed with hep C back in '93, I tried the only treatment available at that time, Interferon injections 3 x a week. I took it for about 6 weeks and my doctor was alarmed because my white count dipped so low. He tried cutting it down to twice a week and then tried decreasing the dosage, but the white count kept falling and I was catching every germ going around in my office. So he took me off treatment. A couple of months later, I had different insurance and a different doctor, and tried Interferon again. After 3 weeks, the same thing was happening, so I took myself off it that time. I decided to do nothing and just live with the hep C. I did get increasingly fatigued, to the point where I could only work P/T. I started out with 28 hours a week, but by the time I got approved for SSD in '05, I was down to about 12 hours a week. Around the same time, I was diagnosed with liver cancer.
So you can just live with the hep C and not do treatment again and you may be okay for awhile. But eventually it will start affecting you. The risk of liver cancer in untreated hep C is very high. After the cancer was dealt with, my hepatologist was nudging me to try the "combo." However, I felt I could not put my body through any more after having bilateral hip replacements and revisions and cancer treatment and surgery. In Jan. of this year, I was told about the new treatment that will be available next year and because it's taken for half the amount of time as the combo, and because the success rates are so high, I've decided to try it when it becomes available. I may not be able to handle it, but I'm willing to try. You are right about transplant patients with hep C...they still have the C, the transplant doesn't take that away. It's in the blood stream. Transplant just gives them a new liver. Since hep C takes years to damage the liver, if a person has a transplant after age 50, he could live a normal life span.
That's why I said to give yourself a break. Take time off from doctors and treatment for hep C for awhile. Maybe by this time next year, you will be willing to give the new treatment a try.
Meanwhile, that pituitary tumor is concerning. What is your doctor saying about that?
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"But that was yesterday, and I was a different person then."
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