AIH Support, Research and Friends

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New Member

Date Joined Sep 2010
Total Posts : 2
   Posted 9/7/2010 2:09 PM (GMT -7)   

I am 26 years old and was diagnosed with AIH when I was 21. I have cirrosis and was have been in the hospital for at least a week each year since with complication from the medications and enzymes raising.
I write this post because I have never met or talked to anyone else with AIH and would really love to get some insite on others experiences, research, resources, etc.
I would really appreciate any friendship in this struggle as I feel as if I am alone and I am the only one that knows what it feels like.
Thank you to any and all and I look forward to hearing from you! turn

Post Edited (Annebelle54) : 9/7/2010 3:39:27 PM (GMT-6)

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 9/7/2010 2:30 PM (GMT -7)   

Annabelle, welcome to the forum.  I'm sorry you were diagnosed with AIH at such a young age, but it is manageable.  I'll let Dany know you have joined the forum.  She will be able to help you with information and support.



Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

New Member

Date Joined Sep 2010
Total Posts : 2
   Posted 9/7/2010 2:45 PM (GMT -7)   
Thank you!!! I am very excited to have found this forum.

Forum Moderator

Date Joined Apr 2007
Total Posts : 846
   Posted 9/7/2010 3:06 PM (GMT -7)   
Hi Annabelle,

I too have AIH. I was diagnosed in Jan 2007 at 38. I don't have cirrhosis. I had severe onset and damage but it hadn't scarred.
What meds are you on and how often do you see your doc and have blood work? Did you have cirrhosis at diagnosis or did that come on later? Do you see a hepatologist or a GI doc?
I look forward to chatting with you and helping any way I can!
Diagnosed with AIH January 2007,
CMV (cytomegalovirus) June 2008
Raynaud's February 2010
meds: Azathioprine 100mg, Ursodiol 250mg BID

Forum Moderator

Date Joined Apr 2007
Total Posts : 846
   Posted 9/7/2010 4:05 PM (GMT -7)   


Sorry for the typo on your name...I know that makes me nuts sometimes  blush

Veteran Member

Date Joined Nov 2009
Total Posts : 2358
   Posted 9/7/2010 6:14 PM (GMT -7)   
yeah  well welcome Annabelle... to the best little Healing Well could find... just talk away... and the resident experts on AIH will try to help with specifics.. and the rest of the crowd... well we'll try best we can for support and such.. welcome... welcome... nice to meet you... yeah oh Im Sandi.. my partner had ESLD

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 9/7/2010 7:09 PM (GMT -7)   
Hello Annebelle and welcome to HealingWell.  Sorry that you had the need to find us,  but sure glad you did.  
I also love the name Annebelle.  It's and oldie but a goodie.  
We are a very diverse forum.   Members are patients or caregivers that  probably include most if not all of the liver diseases.  AIH is well represented here.  We are here for each other for support and education. 
As most of the liver diseases share lot's of the same symptoms most of us can relate to what you are going through in one way or another. 
We also have an educational thread in our resource folder near the top of our forum.  It has a lot of good information in it, that a number of our members so graciously contributed to.    
Take care........ thoughts and prayers........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.
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