I briefly took 2 Tablespoons of enulose a day when I was first diagnosed with encephalothopy in 2008. My ammonia levell was 400. I hated it because at the time I thought I could continue working. My hepatololgist switched me to 1200 mg. of xifaxan as I was on my husband's insurance and had only $60 copay. My encephalothopyy has worsened,and I am now disabled, even on xifaxin I experience hand tremors, forget words, and more recently have become confused about
what day it is and have fallen twice. As of September 1st, I am on medicare part d and the xifaxan will cost me $1500 monthly duriing the gap whereas enulose or lactulose would cost $20. I am seriously thinking about
talking to the Doctor's nurse about
going back on enulose. With all the diuretics I take, the side effect of enulose can't be much worse. Also, I don't get help paying for my drugs and would like to conserve some money for post transplant drugs. But I have no idea how low I will have to wait for transplant, my meld is only 14.
At tht end of the month I have an mri and upper endoscopy scheduled. They are again considering do a TIPS.