I was at Mayo at 630 AM today (07/25/11) for blood work and a urine sample, after which I had a 3-hour wait until seeing the TP coordinator. She told me that I am officially listed with UNOS and should receive word by mail this week. I went onto an online database last night, and as of July 8th there are 87 other people at Mayo waiting for transplant. They will not scan me for 3 mos., to make sure the chemo has done its work on the tumor, and be able to get an accurate picture of its size at that time.
I mentioned the possible bronchitis and the TP Coord. ordered a chest x-ray for today. I did forget to ask about the extra MELD points for every 3 mos. on the list.
Prior to x-ray, I had to see a new doctor, an internal medicine doctor who is a Fellow in hepatology at Mayo. She gave me a prescription for a Ventolin inhaler, but will wait for results of the x-ray before prescribing antibiotics. She confirmed that I have an abdominal hernia. There was another doctor (I'm guessing her supervisor) who came in to meet me. He mentioned that while it had been really busy with liver transplants recently, it has now slowed down (lack of available donor organs.) So it may be a couple of months....or more. No problem for me.
She also wanted me to get blood work today for a special factor that would determine the efficacy of hep C treatment on those with genotype 1a. I told her I'd be glad to at any time, but just didn't have time today, as I had to be ready when the van got there to pick me up. Of course, it was an hour late.
Nothing else is scheduled for now. Hallelujah!!
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"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland